Archive for Experience of Urticaria from 2005

its been good to read about other people's experiences..

I suffered madly from urticaria when i came back from a holiday in a hot country (i'm from the North of England, and its cold most of the time) i itched and itched and itched at night! for 2 weeks i could not sleep for itching at night, then it stopped but then i started itching if any part of my body got hit with more than a gentle bump.. i went to see a doctor who just prescribed antihistamines without further investigation or explanation. i dont know if he realised it was urticaria? bad doc, havent seen him again..

nobody said anything about food being a possible trigger. i will have to find out more about it - normally i just put up with the itching! it does get quite embarrassing when people notice that i've come up in hives..

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:lol:This is the first time I have spoken about my chronic urticaria.I have been hospitalised and was on steroids for 2 months because antihistiamines didn't control it. The rash when it came up would be a full body rash.Finally my doctor started to wean me off of the steroids.As of today I have been off steroids for 8 days with only small flare ups of the rash everyday.I'm hoping that as the doctors say it will burn itself out.I'm also going to see a homeopathic doctor. I'm seeing an allergy specialist soon and I try to keep positive and take each day as it comes.

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i have had chronic urticaria for a little less than 4 months and am finding it very hard to understand and cope with. i am a 21 year old single girl and i am sure all you people understand the servarity of this "thing" it not really that attractive. it started when i was living in australia after a relationship went horribly wrong and i was left to finish a college course alone with no family and little friends. as the year become to end, the pressure mounted, after living in the country for 3 years, and having to returning home to start a life yet again. Bringing all my things back, leaving old ties, and facing my wrong decisions. i became very stressed . the urticaria began and alone in australia i thought it would clear up when i returned and were with my family, but i was wrong i have been home 3 week and my little friend seems to have followed me the other side of the world!! i have seen over 7 doctors, 2 english, 3 austrlian and 2 austrian. Well at least i can say that most of the world is at a mist... i will see a dematologist next i hope it helps and i get better. i feel for everyone of you out there it is the most insane "thing" to have and nobody really seems to know what they are talking about!!

hang on in there an good luck katie x:cheers:

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My 28 year old son has suffered with this since about the age of 12. First appeared after being in sea water. Now it appears on occasions when he gets very hot or very cold or goes from hot/cold, or if he has been swimming in sea water. It can look incredibly angry in a very short time, with raised red blotches and mainly appears on arms and torso so carries antihistamines with him just in case. :roll:

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I am a 40 year old wife & mother - I have suffered with this Chronic Urticaria and Angioedema for 2 and a half years now and I am so so so fed up with it all. I have been taking many anti-histamines which enable me to cope day to day (cos I really wouldn't cope without them) but every day is such a struggle - and yes, the docs don't realise how debilitating this disease is! (if that's the right word). It restricts me on a daily basis, I cannot run around with my kids, I cannot mix cakes, when I clean the windows for example I can't use my arms that night because of the pain. It's not just the itching, bleeding, the swelling, the tightness - it's the pain! The swelling and heat is so painful. Last night I couldn't walk because of the hard burning swelling on the bottoms of my feet. If I try to ride a bike I end up like a baboon and can't sit down. Steroids are amazing, they work brilliantly but they're no good for us and we can't stay on them, and when I've come off them in the past - god help me, it's horrendous.

Been to immunologist today and have started taking CICLOSPORIN - it is an immune-suppressant it worked wonders on my friends Psoriasis (which I've had in the past and is also the immune system working to hard like with urticaria), it dampens down our immune system which is what we need. So today, I am VERY HOPEFUL - I will post back in a couple of months with an update on whether it's helped.

Strange thing though - since having this my 6 yr old daughter has had a bout of it for 3 days (just the urticaria) and my husband got it recently quite severe (with the Oedema) again, only for a few days (lucky thing). Seems strange though...

Good luck to all of you and let's hope a cure comes soon but it is unbearable to live with!

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I have been taking Ciclosporin for 2 months now and my Chronic Urticaria and Odema have gone!!!!! I'm sooooooooo happy!!!!

Of course there are side effects with this tablet so I am being monitored, but right now...I don't care. I'm just pleased to feel human again after almost 3 years of crap!!

I'm not sure how long I will be on these, or how they're going to cure it indefinately, but for now I'm very, very happy.

I recommend that anyone who is suffering badly with this condition speak to your doctor or immunologist about CICLOSPORIN and if they agree, give it a go. Bear in mind, it did take about 6 weeks for it to get into my system properly and therefore I went on a course of reducing steroids whilst I changed medication so that I didn't suffer too much.

GOOD LUCK TO ALL OF YOU :D