Are doctors on our side?

Posted , 7 users are following.

Has anyone been told that fibromyalgia is in their heads? Thankfully I haven't but I did go a long time without a proper diagnosis, if I hadn't been referred to a rheumatologist for my arthritis who knows I might still not have one, which frankly scares me hence this discussion.

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9 Replies

  • Posted

    well in a way it is, its the brain picking up wrong signals from the nervous system that sends the pain in to the body . 

    but  its not all in the mind made up wise .it is real . BLOODY real .

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  • Posted

    I'd never even heard of it, my gp thought it was rheumatoid arthritis so sent me straight off to rheumatologist at hospital.

    Saw the rheumatologist 2nd Jan and he said as no inflammation it was probably fibro and he took some blood to test for other things and said for me to go back three months later so 1st April I'm back for official diagnosis.

    Looks like different areas have different opinions on the condition so luckily for me I'm in an area that believes in the condition! Now to get this pain under control so I can return to work after 10 weeks off sad

    Lisa x

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  • Posted

    with all due respect doctors are real sweethearts but they are scientists they are machines therefore they have all the degrees under the sun but usually not one ounce of commoson sense 
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  • Posted

    Not me personally, but heard of loads of people that have.....shocking...of course it's in their heads...pain is like that..no wonder many get depression etc...:-( Australia xxxx
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    • Posted

      i think we are just guinee pigs they throw alsorts at us and hope we will either go way /or something  m ight work.

      if they understood more about the brain and how emotions can affect us they might stand a chance of finding a way of fixing us

      throwing alsorts of pills at us in the hope something might work isent going to solve the probelem.

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    • Posted

      Sooooo true, they just throw drugs at us,, hoping that will do the trick, they think nothing of the consequences down the line...grrr....that's why we need to be informed on Fibro, too bad for them when we go see them armed with such knowledge..they hate it...don't like us knowing too much, at least in some cases it moves them in to researching themselves..avagooday..:-) xxxx
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    • Posted

      yes iv found that to hun they dont know stuff,and when we take info to them

      they get uperty with us like they no best and what do we no about it .

      from all the info iv read i tend to believe that fibro is our prehistoric brain over reacting to stress after a trauma,our flight and freight response gets stuck and we keep on producing harmful chemicals that causes all our symptoms ,

      thats why drugs dont work .

      because the route cause of fibro is in the brain , thats why when we are undermore stress we have flares .

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  • Posted

    Hello Sukest,

    Fortunately not happened to me either. Waited 2 years for a diagnosis, from a rheumatologist, which seems the way with many of us. Thought it was, but didn't say anything till Doc suggested it. I read a letter from a doctor a couple of days ago, and I have talked about it in another discussion (Cherl on casualty again, I think). Shockingly it seems there are a sinificant number of Docs who don't believe. Just have to try and get one who does. Luckily mine does, and researches it as well.

    Take care, Anne

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  • Posted

    Hi Sukest, 

    I've been told its 50% physical and 50% psychological, by a member of a team who happen to be studying the condition at Barts. Thats why at Pain Clinic they usually treat with a holistic approach... using both physio and psychotherapy..... I am doing this now, well I've completed my assessment phase. I don't hold out much hope though as I have had a lot of pschotherapy and counselling in the past and the 2 short sessions I am to have with them will, I feel, be of no use at all. My diagnosis took 2 and a 1/2 years and my doctor although not knowledgeable specifically regarding FM, has been brilliant in her proactive approach to it and very open to my suggestions. Just having someone listen to what you describe, can be so helpful. Usually we may see a lot of other specialists in trying to get to the bottom of our symptoms and unfortunately the rheumatologist is the specialist who has that knowledge about FM but they may be the last person we see. As happened to me. 

    Angie x

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