I was diagnosed with an Hiatus Hernia eight years ago and take 40mg of Omeprazole twice a day. Last February I started having problems as in gulping when talking and feeling as if I was going to run out of breath whilst talking. This progressed to the feeling (and it's every breath) of not being able to fully breathe in or out. The doctors spent months telling me it was anxiety. I had my heart checked as I have SVT and also saw a Respiratory Consultant who after doing test said it was down to being 'de-conditioned. After he said that I joined Slimming World and have a Personal Trainer at the gym three times a week and am now over three stone lighter! I went through a period last year of having to sleep sat up as it was even harder to breathe. I've been able to sleep back on two pillows for months and then this week I had a bad night again. Last August I woke up and wasn't breathing. Have been checked for Sleep Apnea. The Clinic said could be due to Hernia-consultant says no way. Have had this sixteen months and counting. Does anyone have the same symptoms? Thanks.
I was diagnosed with a small h.h. and have awful breathing problems as do many others it seems. Most drs. Wont admit here in uk but in usa they do.
I feel breathless on exertion, talking, eating and just sitting at times. It varies in severity.
Had a chest x ray clear, thoracic spine x ray chest sounded many times, no fluid and an ecg all ok.
It seems you can get silent reflux which means you can breathe in acid which irritates the lungs. I also suffer pain in upper back, nausea and fatigue. Google lpr or silent reflux.
I am underweight if anything so its not just a case of getting fit
Ars you in u.k. as I really suffered yesterday as the air was heavy and hot
I have copied another discussion posted by gail400055 below as it seems to be a continuation of this discussion.
I forgot to say the oxygen levels in my blood fluctuate. They can be as high as 99 but can drop to 85. I had an overnight test done and the average was 93. My pulse is usually around 67 but has dropped to 51. I have a feeling of something stuck in my throat and it crackles sometimes when I'm laid down which I would attribute to the hernia. I am also thinking that oxygen levels etc may have something to do with it. I don't know what type of Hiatus Hernia I have but am wondering if it's the rolling one as it would account for my breathing problems. For most of this year I have had to take the morning Omeprazole earlier than normal as I wake up feeling sick. Also I'm a very light sleeper and wake up many times through the night and for the last few months I wake up and my mouth is WIDE open. Very strange. Am going back to the doctors next Friday and am going to go down the Gastro route. Just hope I don't have to have another Endoscopy!
Hi Gail i also have HH along with barrets and have shortness of breath issues im at a loss at the lack of knowlage with the GP and the lack of consern from the hospital i try to keep to the diet advised and take my meds but still have pain inbetween shoulders and chest ,Ialso dont sleep well i dont know where we all need to go to get someone who knows how to answer our questions and its beyond me as we all have similar symptoms
In my case I also had breathing problems. I thought it was anxiety , my doctors thought it was anxiety, but soon I realized it got a lot better when taking ppi's.
Do you sleep with your bed raised? (not just the mattress or pillows, but the actual bed must be inclined?) This was a god sent tip for me. I can sleep normally ever since.
Now I'm off daily nexium. I take it only when I get flare ups... so 2 or 3 times per year for a few days.
Hope the breathing issue gets solved with you! It's indeed frustrating to see some doctors dismissing this symptom (even though you find so many people that at some point or another, experience this!)
Finally, another tip that worked for me is giving up on cycling and weight training. As soon as I do these, the reflux comes back for a few days.
To keep fit now I just walk or jog or do sprints.
Hi - I had a HH for over 15 years and only in the last 3 -4 years I experienced breathing difficulties regularly. I never thought it could be the hiatus hernia but I found out it was sitting on my lung and therefore was impacting my ability to fully expand my lungs. I have had surgery recently to pull my stomach out of my chest and have a full wrap to prevent reflux. In the end 70% of my stomach was in the chest cavity and I could not eat properly or do much at all without feeling ill. I would ask the doctors to check the position of the hernia in relation to the lungs and the size of the hole which the hernia is pushing through in your diaphragm. If the hernia is moving round it could be preventing you fully inflating the lungs when you exercise. I have the utmost sympathy with anyone suffering as it is such a debilitating illness.
Good luck and I hope you don't need surgery and can manage through the usual lifestyle changes like small meals more regularly and the bed raised suggestion.
My surgery has been a success but it was a big operation and a last resort tbh to try and start living normally again.
Hi, an update after my follow up appointment following last Fridays endoscopy. I have been referred to a surgeon who I will be seeing next week. It looks as if it is bile that's causing both the breathing problems and the more recent nausea problems. My Cardia Valve (L.O.S) isn't working at all and there is no medicaton for bile so it will be the Fundoplication that has to be done. It's taken sixteen months to get this far and I'm so relieved I have an answer. Having lost ever three stone thanks to a mis-diagnosis by the Respiratory Counsultant, at least I weigh less for the op than I would have done!
Hi, just a bit of an update. Been to see the surgeon and am now waiting for a date for the ph and manometry test. Surgery looks like it's going to be the 22nd of August. It would have been sooner but due to the secretary and then the surgeon going on holiday it will delay things slightly.
A bit more of an update. Am waiting for an appointment to do the ph and manometry test. Depending on the outcome of those tests, I will be having the Linx surgery. I feel the Nissen has too many side effects and recovery time is far slower and I'm also worried about the amount of weight I would lose. Linx seems the better option.
Thought I would post an update. Manometry tests were done last week. I got the results on Monday. Surgery is not needed. In fact I've been advised to lower my Omeprazole??? I have to admit I was shocked at how mild my symptoms were whilst on no medication. I expected heartburn and acid coming up and all I really had was mild heartburn that lasted a few seconds and a stitch like pain twice, also only lasting a few seconds. So I am back to the drawing board and left with the nausea and breathing problems.
Hi Gail: I'm not sure if I have HH or GERD or both. Sometimes I'm fine, other times I can't get a full breath. Tonight I stumbled across a website where a chiropractor was showing techniques for relaxing the solarplexes and pushing the stomach down to its proper position. Perhaps pacebo, but I tried of the techniques and am breathing much better ten minutes later. The doctor also has a video showing the techniques.
For what its worth, I hope this is helpful!
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Hi Gail. I have been reading your posts about your HH and was wondering whether you did have surgery in the end. I've been suffering since January last year with recurrent laryngitis. I then got a chest infection which triggered an asthma attack which landed me in intensive care. It took me a while to get over this and afterwards found I have a sliding HH. I was then started on lansoperazole and ranitidine and Gaviscon advance. I then started with a chest infection just after Christmas this year which again triggered my asthma and was in hospital for a week again. I have since has severe problems with my breathing, especially as the day goes on and my stomach becomes fuller. I have a really good respiratory nurse who is referring me to a consultant who specialises in respiratory and stomach related problems. I'm not sure how long I can go on with the breathlessness but hopefully once I'm off the steroids (as they cause extra acid anyway) that things start to improve. I'm just so tired of not being able to breathe properly. I hope everyone else on here has managed to be seen or helped. Thanks, Michelle
Hi Gail. I'm now sat up at 12.17am because I can't lay down to the pressure in my stomach causing me breathing problems. I'm sorry that you are no further forward and do understand the frustration when they tell you it's anxiety. How on earth can anxiety cause the problems we've experienced. Headaches yes, not this. I have been doing some reading tonight and if you can take a look at this report. I have a feeling this is one of the doctors my respiratory nurse is going to refer me to. I hope you manage to find a good doctor. Don't give up. If you type the following into your browser it should come up. I think they are based in Hull, England (I'm not sure if you are in the US). Thanks, Michelle
Airway Reflux, Cough and Respiratory Disease
Ian D. Molyneux and Alyn H. Morice
Hi Gail, I'm only in Castleford! What a small world.
im exactly the same in that my weight has been like this for 12 years. I am slightly overweight but am on steroids for my asthma and chest infection so that doesn't help and apparently they cause more acid!
if you want to take things further again ask your doctor to refer you to Dr McCreanor at Pontefract/Wakefield who is a respiratory consultant but he originally said last year it was the acid reflux that was playing a part in my asthma attack. My respiratory nurse Jacqui Pollington is very good and after speaking to Dr McCreanor is going to refer me to this other consultant who believes hiatus hernia and acid can affect asthma and breathing difficulties.
Im glad you are feeling a little better and hope that once I'm off the steroids I can start to lose a little weight which might help.
I am still convinced that it has got bigger as I feel like I have a fist at the top of my stomach after eating which then causes more breathlessness and my voice starts to change into a high pitch squeak!
i will let you know what happens.
Hi Gail, my husband as just had the op for HH which they did not want to do but due to heart problems the doctor insisted,his breathing is back to normal now the tests he had before the op were all normal just like yours were keep going back to the docs we had to good luck Gail and I hope everything goes well
ps I have just had the camera down and yes I have got HH and sleep apnia and all they do is give me tablets which I say no to they just seem to fob you off my breathing I think has to do with my HH but they don't listen cos doctors know best anyway at least my hubby is ok now keep in touch
I'm having the same problem when I talk I feel like I'm losing my breath but I'm the opposite I feel better when I'm on my sides but if I lay on my back I feel like I'm suffocating I'm having my surgery on march 25 and I'm hoping to feel much better I have been diagnosed with hiatal hernia with upside down stomach which I now have my stin my chest so I'm being careful I saw someone mention tray corn syrup will make you feel like you can breath so I believe that that's went I'm hit the hardest hope your feeling better
It sounds just like the hernia I have all the symptoms you are having I have I'm having my surgery march 25 they as in dr told me there was nothing wrong with me I finally went to a dr in Charlotte and the found my hiatal hernia that is 5 in not 5 cc but 5 in then they did more test and found out I have a upside down stomach which mean that it being so large it has now slipped up into my chest so my stomach is no longer there it's in my chest I hope you found someone to help you I no exactly what your going through
The brathing problem when you have hiatal hérnia is because of the stomach, when goes up, keep pressing tour diaphragm keeping him from expanding properly. Also the hiatal hernia irritates the vagus nerve, wich passes through the stomach and can make you Dizzy and give you a lot of other symptons. Just search for that and you find about It. There are vídeos in YouTube too about that.