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Are my epley experiences normal?

Posted , 5 users are following.

Kikili
Kikili

I have had three epley's done by my vestibular therapist. The first time I was not allowed to take any meds for 24 hours before the procedure. When she was done I threw up for over an hour. She said I'm the first person who got sick after she did it. The second I was allowed anti-nausea meds and valium, but no meclazine. Ididn't get sick, but spent the next day so dizzy I could barely lift my head, and needed help just to walk to the bathroom.  The third time I was not as dizzy, but still too dizzy to leave the house.  It's been a week since my last epley.I haven't felt any vertigo, but Iam constantly dizzy and fuzzy headed.  Has anyone else had such bad issues after an epley?  I am too afraid to try it again, not knowing how miserable I will be afterwards.

0 likes, 15 replies

15 Replies

  • deb39563
    deb39563 Kikili

    Posted

    I too was super sick vomiting all over I was off balance for days not to bad the second time still felt off though I have it done several times now never as bad as first timeSo keep going good luck
    • Kikili
      Kikili deb39563

      Posted

      Thanks for the encouragement.  My therapist said most people only need 1-2 sessions, but some need up to 8 sessions.  I am trying to get up the courage to go for session 4.   I'm a very motion sick person to start with, so that probably isn't helping anything.
  • helen91488
    helen91488 Kikili

    Posted

    Hi, I know what you mean, my GP let me keep taking my meds but I still felt dreadful for days after. I'm nervous at having it done again. Five weeks since all this started and I just want it to end. I can't work can't plan anything, one day I think I'm on the mend then back I go again. Couldn't tolerate the MRI so having to go to an open scanner. Taking betahistine 3 times a day ... And still getting symptoms. Let's hope we all improve soon xxx
    • Kikili
      Kikili helen91488

      Posted

      It is awful living this way, Even a trip to the store takes an effort sometimes.  I am lucky I am able to make it to work most days, after taking my cocktail of valium, anit-nausea pills and dramamine (we don't have betahistine in the U.S.)  I hope all goes well with your MRI scan. Let me know how it goes if you do another epley. Wishing you the best!

       

    • Jac27
      Jac27 helen91488

      Posted

      Hello Helen, hope you don't mind me asking but what sort of after effects did you have from the epley treatment? I'm due to have it Thursday and am unsure what to tell work. I know what you mean about not being ableto plan, I have good and bad days and struggled into work when I probably shouldn't, given in today just seems to be no rhyme or reason to it.

      Jacqui

  • gillian76726
    gillian76726 Kikili

    Posted

    I had no results,,good or bad from th Epley when I had it,done.  You may get some answers in the VEDA site . vestibular disorders association (They have. Website and a FB page, so ask,on there)
    • Kikili
      Kikili gillian76726

      Posted

      Thanks, I will look into that. I never heard of VEDA.  I have to learn all I can about this condition, All my doctors keep telling me to wait it out and it will go away by itself, but I have read so many posts from people who have been suffering for years, It seems like I may need to diagnose myself, then go to the doctor with what I discover.
    • gillian76726
      gillian76726 Kikili

      Posted

      Ys educate yourself, most important  because waiting for a medical,person who has not been trained in this you will have left this earth before you get any useful help from them!! veda is very good.you dint need to join ormpay membership which they have,you can still join their newsletter and go,on the FB page. 
    • Kikili
      Kikili gillian76726

      Posted

      Thanks. I joined their facebook page and signed up for their newsletter.
  • Olizzieo
    Olizzieo Kikili

    Posted

    Hi it sounds like you are having a terrible time!!! Have you seen an ENT/ Otolaryngologist for a diagnosis?
    • Kikili
      Kikili Olizzieo

      Posted

      I saw an ENT-he said BBPV,but when there was no improvement,he referred me to the vestibular therapist and a neurologist.  The neurologist did the basic follow my finger with your eye tests, and me nothing was wrong neurologicqally.  Then the neurologist told me not to do therapy or take meclazine, and just wait it out and it will pass.  I have read enough posts to know this can go on for years for some people.  I sure am glad I have my valium!
    • deb39563
      deb39563 Kikili

      Posted

      I do know I have I have vertigo in left ear because the epsey manuer work ed a few times now but I also have vestibular neuritis plus I have pulsate tinnitus does any of u have all three I have had these issues for five years should i just live with this or has any body found a real solution hope so let me know so sorry kik lilies should have started my own post but I figure we are all together
    • Kikili
      Kikili deb39563

      Posted

      I have the vertigo and tinnitus (that I have been diagonsed with so far).  You poor thing, you have a lot of bad stuff going on. Sounds like you've made the rounds to different specialists with no help. No one should have to live like that. I pray there is a solution out there somewhere.  Unfortunately, those who have gotten better probably leave the forum,so we may never know what worked for them.  
    • deb39563
      deb39563 Kikili

      Posted

      Hi again coping with this inner ear stuff is hard but keep on going kinda have no choice I do go to physico and keep doing balance excercises retraining my brain seems weird to me but I will try anything hopefully one day things will be normal what ever that is haha thanks for posting talk soon
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