Are my symptoms normal?? muscle twitching & weakness

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Hi all!

I was diagnosed with gilberts at 16 (10 years ago) since then the usual cycles of mild jaundice in eyes feeling fatigued & brainfog but knowing its normal amongst people with GS its never truly worried me.

About 2 years ago i started experiencing a strange dull pain under my ribs on my right side. I got my blood works done again along with CT scans and was told everything was fine. With managing my diet and putting less pressure on my liver the pain subsided and comes and goes when i have my 'bad days'.

5 weeks ago i had a very long from New Zealand to the UK and the jet lag wiped me completely and all the usual symptoms became very severe and have only started to slowly recover from. However since then i've been experiencing more troubling issues with muscle twitching and weakness mainly in my calfs and knee pain which is making it difficult to walk up and down stairs. Is this normal? Has anyone ever experienced this?

I have been through 3 different GP's and a Gastrologist countless bloodtests and scans all coming up blank apart from that I have Gilberts Syndrome... I feel like the doctors are now looking at me as a hypochondriac and ive given up going back and forth to my doctors just to leave feeling 'thobbed off' .

Love to hear others experiences makes me feel like we aren't alone in this!

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4 Replies

  • Posted

    my son is having a bout of facial muscle twitches which we are addressing with b12 and siblingual D drops in the morning and magnesium and D at night. seems to be helping. blood tests for D show improvement from 13 to 20 (healthy minimum is 30) . hope this helps. low D messes with lots of bodily functions.

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    • Posted

      Thanks alot for your reply! Hope your sons well. Think I will mention that to my doctors, done so much blood work its difficult to keep track what they have tested or what might have been missed.

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    • Posted

      my son is 16 . i have to be an insistent helicopter parent asking for copies of every test, and googling everything. every doc blamed his brain fog and fatigue on his 2017 concussion -- but nobody tested D. Well, after 6 months of indoor recovery it should have been expected . voila.

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  • Posted

    I've had very similar symptoms to you - almost identical in fact - including muscle twitches in my legs for over 10 years.

    Have also noted that symptoms increase after extended air travel. My last two trips have required doctor's visits while away and again upon return.

    I had alternative medical doctors diagnose me with Lyme disease and was treated for that for about 3 years with marginal improvement.

    Don't really have any answers for you, but interesting to know our symptom patterns are so similar.

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