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I was diagnosed with gilberts at 16 (10 years ago) since then the usual cycles of mild jaundice in eyes feeling fatigued & brainfog but knowing its normal amongst people with GS its never truly worried me.
About 2 years ago i started experiencing a strange dull pain under my ribs on my right side. I got my blood works done again along with CT scans and was told everything was fine. With managing my diet and putting less pressure on my liver the pain subsided and comes and goes when i have my 'bad days'.
5 weeks ago i had a very long from New Zealand to the UK and the jet lag wiped me completely and all the usual symptoms became very severe and have only started to slowly recover from. However since then i've been experiencing more troubling issues with muscle twitching and weakness mainly in my calfs and knee pain which is making it difficult to walk up and down stairs. Is this normal? Has anyone ever experienced this?
I have been through 3 different GP's and a Gastrologist countless bloodtests and scans all coming up blank apart from that I have Gilberts Syndrome... I feel like the doctors are now looking at me as a hypochondriac and ive given up going back and forth to my doctors just to leave feeling 'thobbed off' .
Love to hear others experiences makes me feel like we aren't alone in this!
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