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Are polls ever done on this site?

Posted , 8 users are following.

lynne1945
lynne1945

hi,

I'm wondering if anyone has ever collated info from here regarding LS. I know we have the start up questions page, but is it ever put together and the answers posted? Plus even more personal stuff, maybe anonymously? How it started for you, what age, any relatives have it, ethnicity, just loads of stuff. I know having common denominators doesn't really help us dealing with it, but it could be interesting and would maybe be even fascinating.

For instance, I read recently on another blog that polled over 100 people that 99% of them were blonde, brunette and redheads and skin type was very fair, fair and medium! 

Cursing my fair skin right now! cry

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  • suedm
    suedm lynne1945

    Posted

    Hi Lynne,I think it would be a really good idea to build on the previous survey

    I hoped to be able to set one up a while back but life intervened!

    I am a faded red head with fair skin.

    My sister has a mutation of the MTHFR gene- that I also probably have. It has many auto immune issues conected withthe 1298c mutation (- or variation) This particular mutation isn't researched to the same extent as the more often cited 677a- (this mutation excites medics as it has heart implications whereas the 1298 is mainly neural tube damage and appears to be less frequently evident )I am awaiting for an appointment to have a genes test- My gp had  never heard of the gene and consulted a biochemist who undertook his PhD in the 677 mutation so I was tested for homocysteine - the enzyme that is raised predicting a heart issue more accurately than the fasting cholesterol test. it is an expensive test and takes 6 weeks so medics dont normally do this test sadly But in  my case it was unnecessary and it came back in the normal range, which is good

    While one cannot change ones genes one can change how they affect one's body. 

    I had not been a great advocate of radical changes in one's diet, however looking at the science of the methylation cycle - a very complicated biochemical activity which I still dont fully understand, I realise that absorbtion deficits will or can underlie many auto immune conditions. However until I do get positive evidence of a mutation in my MTHFR gene I will not drastically change my "everything in moderation" stance, but will do so if there is clear evidence it will help  my health

    Sue

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