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Are the specialsts on this site for real???

Posted , 1 user is following.

chelsea12
chelsea12

What is meant by terminally ill?

This means a person is suffering from a progressive disease, and where their death can be reasonably expected within six months.

^^what a looad of...^^

I have Spino Cerebrellar Ataxia Type 2

A progressive degenerative hereditary TERMINAL illness

At no point do I consider myself or family to be dead within 6 months! I find this completely insensitive and obstruct!! Perhaps research on these things is what the specialists should be doing before they made up more hypocritical claims!!

Anyone in the same disgusted position??

1 like, 8 replies

8 Replies

  • Emis_Moderator
    Emis_Moderator

    Posted

    Hi chelsea12,

    I will pass your comment on to our clinical editor to see if the leaflet should be reworded and thank you for raising this.

    Regards,

    Alan

    Emis Moderator

  • Emis_Moderator
    Emis_Moderator

    Posted

    Hi chelsea12,

    That "definition" is from the DWP and is what they apply to claiming the benefits. Our article has been changed to say below to clarify and will be released to the site shortly.

    The definition used by the Department for Work and Pensions when they assess a claim under the special rules, is that a person is suffering from a progressive disease, and their death can be reasonably expected within six months.

    Regards,

    Alan

  • secret
    secret

    Posted

    Oh good god poor you i dont think any specialist should be defining such sensitive things no one can know the life span of patients surely??
  • chelsea12
    chelsea12

    Posted

    @sectre: Listen, why dont you do some research on cerebrellar ataxia idiot! Before you start blabbing, please please know what you are blabbling about!! I sincerely hope you or family never suffer a progressive terminal illness... but god forbid it happens, I'm sure youd be chewing your words..

    @ alan : Thanks smile

  • secret
    secret

    Posted

    At chelsea hang on i was defending YOU please re read. I just have heard of many cases where docyors say this patient will die in x amount of months and after two years patient is still alive. So speciliasts should define with caution. Don't see why you are drama queening here.
  • chelsea12
    chelsea12

    Posted

    Oh god sorry, took that the wrong way x
  • secret
    secret

    Posted

    Oh no dont worry. X i too have celleb probs with recent lesions that have come up in a scan but no vertigo problems as yet just stiffness in muscles etc. I hope its nothing too serious.
  • chelsea12
    chelsea12

    Posted

    Try a wee bit of radox that always helps my muscles and stay in the bath for about 25mins .. hot but not too hot.

    Basically, i'll loose my speech, mobilty, get really shaky, my memory disintigrates and I lose all performance of me reallyy. As much as it sounds scary im 21 and had since i found out to cope with it, but I believe everything can be cured one day and all I hope is that there is a treatment or cure by the time my wee boy grows up god forbidding he has it! xx

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