Are the symptoms of Fibromyalgia constant?

Posted , 7 users are following.

Over a year ago I was diagnosed (After a Rheumatologist ruled out every Rheumatology condition) with Fibromyalgia, at first I thought it was strange because my main symptom is extreme fatigue- not pain. I know fibromyalgia is different for everyone.  

However, one thing over the year I have noticed (I've met some people with fibromyalgia) My symptoms seem to come and go throughout the year, whereas, the people I've spoken to their symptoms remain throughout. 

Also, after changing GP’s I have been referred to a neurologist (Waiting for an appointment now) because of pins and needles (mainly in my back) which the rheumatologist said wasn’t related to fibromyalgia. So, not sure if that’s related as they do tend to come on with the fatigue etc.

Does anyone else know if it’s normal for symptoms just to suddenly, “Flare,” Up or is Fibromyalgia a constant thing?  

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8 Replies

  • Posted

    Mine is constant but can flare up even worse sometimes where I can not do anything but stay in not going anywhere. I was diagnosed by the same ppl has you I just felt she was not that helpful has my mind get foggy when being told some things
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  • Posted

    Mine is constant but can flare up even worse sometimes where I can not do anything but stay in not going anywhere. I was diagnosed by the same ppl has you I just felt she was not that helpful has my mind get foggy when being told some things
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  • Posted

    Mine flares up.mine all started last October when I Thot I had flu.farigue was shocking,body ached soooo bad.puns and needles in my hands.dry skin,dry mouth and other stuff.mine flares up when I'm really stressed.

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  • Posted

    My condition is constant, but at certain times it flares up worse. I first started getting symptoms of numbness and feeling of pins and needles then the pain joined the party. 
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    • Posted

      mines the same as rachels, constant for the last 3 years with pins & needles, dizzines,tinnitus,fainting spells,tiredness to name a few but the chronic pain didn't start till year 2... i have flare ups where i get a lot worse if i over do it but i'm symptomatic everyday.. 

      x

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    • Posted

      Hi.I was diagnosed with fibromyalgia in 2011 but seemed to recover. I was amazed to read that you have tinnitus,dizziness and fainting spells as well as extreme fatigue. You have just described what has been happening to me for about 6 weeks. In 2015 I was diagnosed with a vestibular ( balance) disorder  which lasted over 10 months.I had assumed I now had some kind of virus which had triggered the balance disorder. I am therefore quite shocked to read of your fibro symptoms and you've got me wondering whether my vertigo/dizziness could in fact be the fibromyalgia? The specialists were never able to give me a proper diagnosis for the balance disorder, saying that I didn't seem to fall into any particular category, Can you please tell me how the Dr's came to the conclusion that your dizziness and tinnitus are related to fibromyalgia and how your dizziness , fainting spells etc present themselves? I'm due to see my GP tomorrow,

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    • Posted

      Hi, well mine all started really abruptly on the 21st october 2013, i was just walking down the street and i blacked out, only for a split second but everything just went black all of a sudden.. then i burnt up with hot flushes but my temp was normal, i couldn't focus,my ears were screaming like a bomb had gone off in my head, everything was spinning, i had no balance to walk at all, i had tests,mri's,neurological assements and every blood test you can think of but apart from a low vit & folate everything was normal as far as they could see. i have pins and needles all over my body even in my mouth, i have constant vision disturbance, hot flushes like the menopause, noise sensitivity and horrid tinnitus still, i can't exercise at all without over heating within 5 mins and fainting or at least extreme dizziness and of course the perminant pain all over which increases if i do too much.i actually think i have cfs/me aswell but up to now only the reumatologist said i had fibro form prodding me in certain places and me wincing.

      if that sound familiar then yes it could all be fibro.

      good luck at the dr's tomorrow.

      xxxx

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    • Posted

      Thanks for replying and for the info. I have had a lot of "mysterious" illnesses over the years which started when I was 13. Symptoms seem to flare up every few years. Dr's do numerous tests, most of which come back normal and yet I have felt as if I'm dying on several occasions ( no exaggeration !). Was also thought to have CFS on several of those occasions. No one has ever been able to get to the bottom of things which has often left me feeling like a bit of a hypochondriac even though I know I'm far from it. Recently spent 3 days in hospital with the GP declaring I'm "a bit of a mystery". I'm sure that one day they will have the answers to all of this.Unfortunately it might be too late for me ( I'm 60) but hopefully you will be luckier. All the best. XXXX

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