ARE THESE ALS SYMPTOMS?

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I have had a bunch of weird symptoms that doctors can't seem to figure out.

I've had an MRI of head and brain, multiple blood test including a Lyme test, and a chest X-ray.

My symptoms started about 3 months ago with pain associated ONLY on the left side of my body. At the left elbow, behind the left knee it became hard to walk for awhile, and my left pec/neck and jaw muscles seemed tight.

Thats how it started and I was given pain and muscle relaxants by my GP. Later on I started getting weird twitches on my thigh. Only my thigh. My GP examined them and he got to see them go off. He said it was BFS or benign fasciculations.

Most recently I started getting weird cold sensations in the back of my head/neck which feels odd and I get twitches on my bicep and sometimes triceps and still around that left leg.

IM 18 YEARS OLD. I emphasize that because all of my doctors that I've talked to have set aside ALS. Because of my age. Although I know it is rare. I know it can also be a possibility and almost if not all of my symptoms match what I've read up on google which I know, is a bad thing since it can get my anxiety levels up and trust me it has.

I have weird back pain in the lower left half of my back and I see a twitch on the right side of my neck, not associated to my heart beat.

I'm getting very worried as I feel that no one will hear me out on my ALS fear. It's not that I want that disease but I haven't been told that I have anything else that could be making me feel so odd lately. I want to feel healthy and normal again. I use to lift weights often and now I'm just an anxiety, twitching wreck.

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7 Replies

  • Posted

    Hi Nick,

    I had to look ALS up so I am only reading what you are reading.

    Ask Doctor if you can have a test for ALS from a Specialist who deals with it,  to put your mind at ease and if Specialist says you are okay then ask him what is making you like this,  as stress is not good for you. 

    Good Luck

    Win x

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  • Posted

    I don't see why you are worried about ALS what so ever you don't have a single symptom of ALS twitching is never a first symptom of you can still walk on your heels and tippy toes and raise a cup of coffee to your mouth or you can move your tongue up down and left to right then you don't have ALS. Als is true clinical weakness you notice one day you can't do something you could do just yesterday. I personally have never heard of a 18 year old with ALS unless they had a family history of it so you'd be a world record. Just a piece of advice don't go down the road you don't have ALS
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    • Posted

      Thanks to the both of you for the replies. Although I do understand what you're saying about clinical weakness and not being able to do certain things. I'm just worried I'm starting to develope ALS symptoms. very scared.
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    • Posted

      Why because you are twitching? Half of the population twitches and they dont have ALS lots of things cause twitches anxiety lack of sleep or vitamin deficiencies ALS is at the bottom of a very long list of causes I think your good
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    • Posted

      I'm just feeling really weird, the twitches, the heavy feeling in my arms. The pain and weird cold feelings in my head. The way it feels to walk.
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    • Posted

      Also pain is not an early symptom early either it does occur later in ALS when most of the involved muscle is gone that's when pain sets in
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  • Posted

    Now Stroud has told you, so please stop stressing so much as stress is a bad thing to have.

    Keep smiling and singing, sounds daft but that's what got me through my SAH/Stroke

    Win x

     

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