Are these really things caused by fibroid? Dizzy, breatless ec

Posted , 6 users are following.

Morning all

For the past 3 years I have been feeling ill in stages, it began with a dizzy lightheaded spell like I might faint, I remember the exact day it happened and things haven't been right since. 

Symptoms come and go but I may have a couple of months when I am OK but then the next 3 months will be full of sporadic symptoms. The only thing they found was a large fibroid and since I've had that I've had different Dr's tell me my symptoms are absolutely not fibroid related and others tell me they could be, what do you think? Fibroid is 17cm by 17cm so it's a fair size



Ear pain

Face pain

Crawling feeling in skins on feet, nose, feeling things that aren't there

Ringing in ears

Feeling like I have difficulty breathing like I'm suffocating

IBS type symptoms

Veins on my hands and wrists become more prominent and visible and the its seems much easier for me to get a dead arm in certain positions than normal

Feel like I'm not generally "with it", like I never fully wake up and my body is telling me something isn't right, head is foggy and thinking seems harder

Palpitations and fast heart beat

Feeling like as I am about to go to sleep my body jumps like I've stopped breathing

Numbness and burning sensation in my thigh

Pain in arms

Generally quite tired and achy

Some general pains around my body and joints, arms, jaw, hips

Total body numbness upon laying down

As I sit here I can look at the symptoms and relate them to anxiety which is what my Dr said it was but I think its something else. I am fortunate enough now, following some sessions with an anxiety specialist, to be able to recognise when I am anxious. I get anxious when I am feeling ill, and when I am not. So now I feel confident that I can say these symptoms are not caused by anxiety.

I have had the following checks and illnesses confirmed:

Brain/inner ear scan (all fine)

Scan of liver, pancreas, kidneys and spleen (all fine)

Pelvic scan (which revealed a large fibroid)

Numerous blood tests, numerous times (all fine)

ECG (all fine)

Heart monitor for a week (revealed possible atrial fibrillation for which I was on meds which made me breathless so GP agreed to stop them as was not concerned)

Heart Echo (all fine)

I feel like my symptoms are general but together alarm me, I also have the nagging fact that my breathing ins't down to either of these things which makes me feel like my GP has fobbed me off with a diagnosis of something that I cannot be treated for just to get me out of his office. 

In this time I have switched GP's because of feeling fobbed off but they see my age (33) and think it cant be anything serious. I am at a loss as to what to do so I have begun my search for logical illnesses that I can then ask my GP about when I go. 

Needless to say I am frightened because it seems like something that is not going away alone and that is here to stay if not treated. I feel that this is something which seems to come and go in waves but never totally goes away.

Thank you all and any thoughts you have might just help me in getting to the bottom of this. 

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9 Replies

  • Posted

    Hi gem1971,

    Do you have a lot of blood loss? I know you said your blood tests were all fine but I got told the same after I'd been losing a lot of blood for about a year by a doctor who basically just dismissed my concerns. Fortunately got given a new doctor who told me I was close to needing a blood transfusion (Which is how I felt.)

    Research your rights as a patient and see what your options are for getting a new doctor/ a second opinion. All doctor's are not equal.

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    • Posted

      Thank you, no I don't get a lot of blood loss unless it's possible that the fibroid is internally raking my blood as it grows! Other than that no!

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  • Posted

    HI Gem,

    I also have a large fibroid 18x13x11cm and I get many of the same symptoms. The fibroid could be putting pressure on nerves in your back and also at times pushing up against your diaphragm. I open my bowels several times a day but if I didn’t I would be breathless from the pressure of the fibroid. Is there a plan to manage your fibroid because it may continue to grow. With the size I imagine it’s also putting pressure on your kidneys? X

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    • Posted

      Hey, I'm having it removed in about 6 weeks which cannot come soon enough, I feel like it will be a real telling time, to see if it is the pesky fibroid or if I need to push further. Do you have plans for yours?

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  • Posted

    HI Gem,

    I bet you can’t wait, it’s never felt so down in my life. The pain and discomfort I get is unbearable at times. Currently on antibiotics because my inflammatory markets are raised and dr not sure whether there’s an infection in the fibroid. I am having zoladex injections to shrink the fibroid and reduce the risk of bleeding excessively in theatre. The plan is to have a myomectomy in 9 weeks if I can make it that long. My fear is that if things continue as they are I might end up having an emergency hysterectomy.  I’m 32 and would like more children xx

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    • Posted

      You poor thing, I don't get the pain so I'm lucky it was found by chance whilst examining me for my above symptoms. I hope you get to see your operation through as you want it, I don't have children and not sure if I want them but this situation sure has messed with my head!

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  • Posted

    Hello gem1971,

    I will like to say that you have just said everything that is happening to me and sometimes I even feel ashame to say exactly how I feel  (symptoms) to people. You are really very couragious and I like that. I will really like to have a private chat with you if possible because I am passing through all these mess but the heart palpitation has stopeed without any medication. That heart palpitation is the worst of it all. It feels like one will die within seconds. My UFE procedure will be done before the end of this year hopefully. Just waiting for my Dr to send me the appointment date for it. How will you contact me? Write me through: 

    Please write me because you will understand me better. I have been feeling like I am alone in this mess called fibroid. It's really crazy and I don't live my normal life anymore.

    Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

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