Arnold chiari came back and can it be associated with brain clots?

Okay so long story but in 95 when I was 4I had to have decompression surgery and then a few months later during my fifth birthday hospital stay  they had to go back in and fix it. But everything was better for a bit, seizures went away, I could breathe, eyes didn't bug out, neck pain was gone, I was poster child for awesomeness. 

10 years later I had a stroke, seizures came back, diagnosed with lupus, had dvt in leg, had some memory issues, and depressionand bipolar which I was warned would eventually happen anyway after decompression. Well after this stroke I was told anytime I pretty much had a god awful migraine to go to the ER and get an MRI done to make sure it's not a stroke. So flash forward to 2013 I go to the ER with a bad migraine and my legs go paralyzed. Apparently they find nothing and it was just a bad migraine and all they found was arthritis on the MRI. 

Also flash forward to current time where they found out I have blood clots in my sinus area which have apparently been there for two years and they never told me. I've also been dealing with seizures, memory loss, severe nerve damage and pain, weakness on my left side, pins and needles, neck pain, back pain. I've been getting shots and my nerves burned for almost a year now and either doesn't last or doesn't help. Apparently my left side weakness and nerve pain isn't caused by a pinched nerve so my pain management can't figure it out. 

But back to the clots. I went to the ER with a migraine and they told me I had a chronic clot they saw from an MRI there in 2015. Thanks for telling me. So I'm seeing a stroke specialist. He requested files from the ER o went to in 2013 since it's the place I had the stroke in 2005 as well. Apparently in the report (since I got a copy as well) it stated they have Arnold chiari malformation 1 with my tonsils or whatever at 11mm and to recommend to see a surgeon to possible decompression. Mind you this was FOUR years ago, no one mentioned anything when I had that done except arthritis which wasn't even mentioned in the report. So now all the symptoms make sense. 

I also looked at MRIs from the doctors and ER I currently go to and only two mention the tonsils and crowding with no specific mm in it which of course was not mentioned to me. So I did make an appointment at a different place and I'm scared to death. It all makes sense with the symptoms but can chiari cause blood clots too?? And my symptoms literally get worse everyday, is it possible for it to get worse than 11mm or does it stay at the same place?? I just don't remember since I was so little and both my parents who were there have passed away. 

I'm so nervous and waiting a month and a half for the appointment is tormenting me and my anxiety! Sorry for the long post just freaking out over here! 

Also just wondering if anyone has had clots caused by chiari. Thanks! 

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