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As

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popeye62
popeye62

Evening everybody I was diagnosed in feb  last year and have been on etanercept needles once a week since February this year, still get pain in neck lower back, the worst is my right leg upto two weeks ago it was bearable , since the on set of this rubbish weather pain as increased back to old even with jabs. I was 49, when started with symptoms took my gp nearly two years to believe how much pain I was in to refer me at hospital then more time on trial tablets different ones, also questionnaires scans blah blah blah, needless to say it was a long haul to get where I am today, so if you are in the early stages of getting a diagnoses keep on at them remember it's you that's in pain, also in august I started with artiral fibrilation heart rubbish, excuse the spelling don't do big words lol, by the way I'm only 52, I find when I'm driving I get bad pain in my ankle any ideas apart from the wife driving me all over. Anyways must go so if you are new to as the best of luck and try the etanercept needles upto later I have been nearly pain free 

0 likes, 4 replies

4 Replies

  • CA-Lynn
    CA-Lynn popeye62

    Posted

    Osteoarthritis may also be a problem. It tends to be painful when cold, damp weather sets in.

    I have RA, PsA, OA, DDD, AS......taking Humira and its a godsend. However, sometimes I get the breakthrough pains in the lower back. I have a presecription for Tramadol, a synthetic pain killer. It won't get rid of all the pain, but takes the edge off. And sometimes that's good enough.

    Good luck.

  • jackie08900
    jackie08900 popeye62

    Posted

    I'm expecting a diagnosis (suggested by a senior physio, MRI booked for next month) but a doctor (friend) told me at the weekend that I couldn't have AS because I was too old (51). It's oddly reassuring to hear that I'm not the only one floating around with all the right symptoms but nobody spotting it for years (I'm female which probably hasn't helped). I'm very pleased that the etanercept has helped you so much. smile

    (Reassuring may sound an odd thing to say but actually it would help to know what the problem and get the right advice on how to deal with it, rather than just gradually losing mobility (and sleep!!), with no-one medical joining up the dots on my symptoms, and non-medical people tell me to just get more exercise, do pilates etc.)

    • popeye62
      popeye62 jackie08900

      Posted

      Hi jack or Nigel here again, yes it is annoying getting your voice heard at first I thought I was being dramatic went on different courses of pain killers, finally got to see speciallist at hospital she is brilliant. I felt awkward about my symptoms old before my time, as for the pain before my needles just took my tablets also co codamol , now and then got myself a heat pad for my back and had nice hot baths as for sleeping wife used to call me the house ghosts up at silly o'clock every night haunting the place. Since useing etanercept I have slept through apart from the past week I think it's down to the onset of this damp cold weather. As I said last night keep dogging them end of the day it's you in pain not them good luck keep warm also try voltorol rub helps abit
    • popeye62
      popeye62

      Posted

      Sorry for the jack , jackie this bloody iPhone puts what it wants down
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