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I have had AS for a long time now, 20 years+, and was diagnosed 12 years ago. Since then I have just been prescribed CoCodamol and Dicloflenac for when the pain is really bad. However I try not to take them regularly as I do not want to become addicted or succumb to any of the other side effects. Also I cannot really take them when at work as I teach and the CoCodamol tends to make my cognitive functions be less then optimal
Although the extreme pain comes and goes in flares I am always in pain when I stand, lie down etc however my biggest issue is fatigue. I just cannot function properly, I can sleep for 15+ hours straight and still need another nap within a few hours of waking. I come home from work and just have to sleep, sometimes for 7 hours before I wake enough to have something to eat and back to bed before another day. Weekends are spent "recovering". This is no life, I don't go out, see friends or socialise in any meaningful way (the last time I went out was in December 2016)
As a teacher this is a problem as I should do a LOT of work in the evening but I just cannot. So I fall behind with my work which is leading to problems at work.
I have been referred to a rhuemy (I have not seen one in the dozen years since diagnosis) and am awaiting an appointment.
Does anyone else get this fatigue? This disease is ruining my life.
(I am in the UK)
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