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AS but no treatment

Posted , 8 users are following.

khairnar
khairnar

Hi,

At age 40, i suddenly started back pain, it became so severe that i cant walk, bend, twist. I am having this issue since 2 years and in lot of pain. 

I am hla-b27+ and visited 4 doctors till now, but no one is starting any treatment.

In last 2 years, I have done four MRI scans (3T) spine & SI joint(detail, stir) but without contrast  but everything normal. 5 xrays, one 3D CTScan but they are normal. tested blood 8 times, esr always range between 3 to 10. CRP less than 2 always, all other tests thyroid, lever, kidney, SGPT etc etc. are normal. But I am in heavy pain, it is so bad that I cry many times. My entire body pains.

My all 4 rummy doctors not starting medicine, they says that I dont have AS. Please help what to do. If there is no issue in spine, or any joint, nothing in blood then why I am in so much pain in 24 hours sad

I left my job since 8 months. I have small kids. I am not taking any medicines. 

Any specific test can help me. Please advice.

0 likes, 22 replies

22 Replies

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  • khairnar
    khairnar

    Posted

    Hello everyone,

    I cannot express how i am feeling after reading your replies. I feel that there are someone who are listening to me and understanding me otherwise doctors are now started sending me to psychologiest by saying all is in your head.

    Thanks friends for your support.

    • kay72736
      kay72736 khairnar

      Posted

      Hello again, you are not alone.  This is not a physical endurance test, it is also a psycholigical battle.  Some times I feel very weak but I am not going to lose!  Hope you get some answers soon. 
  • jillian41791
    jillian41791 khairnar

    Posted

    One of my doctors told me to keep a pain diary for about 3 months, and then it's an other resource to use as proof.

    I did it and discovered I needed pain relief 6am Noon and 6pm and he also prescribed lyrica to help me relax ( mind and muscles ) so I could get decent nights sleep and low dose of endep to reduce feelings of depression and anxiety.

    I was advised to learn as much as I could about AS and fibro then list my symptoms and take this to the doctor.

    Remember they are the Dr but be prepared to break down if you need to. It was the only way I got results. Got my results finally from going to a new Dr, fresh out of Med school.I booked a double appt. But it took longer...

    I told her that I was desperate and really needed her help and she ordered many tests for me. She got the ball rolling...

  • khairnar
    khairnar

    Posted

    Thanks for great support.

    i always think on 3 points

    1. Why no inflammation in mri, ctscan when i was not able to walk 10 feet properly?

    2. Why esr 3 and 5 when i had bone cracking unbearable pain?

    3. I used to pick more than 20kg weight in one hand and suddenly in a month not able to pick one kg?

    Medical science need improvement.

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