1. Community
  2. Bones, joints and muscles
  3. Lupus

Asking for any advice?

Posted , 4 users are following.

missy1975
missy1975

I have lupus, raynauds, and RA, I take plaquenil, for the last 4 months, and lately I have been freezing down to shaking inside and out, nothing gets me warm, I have gotten like this before from the raynauds, but it's been happening daily now, for a few days, then after I warm up a bit, I start running a fever, I just wondered if anyone has any of these symptoms? I have so many symptoms that it doesn't seem possible, you hate to complain to people that wonder why you never feel good. Thank you to all for helping if you can

0 likes, 3 replies

3 Replies

  • marion64534
    marion64534 missy1975

    Posted

    Ask for a blood test for your inflammatory levels bet they are high.i have had symptoms you describe it's awful you just cannot get warm then you are boiling, mine did pass off took a while though, sorry can't be of any more help, good luck.
  • jean20935
    jean20935 missy1975

    Posted

    Hi Missy

    I sympathise very much as I follow a similar pattern. I do not have Raynauds but MCTD with SLE and Osteoarthritis. I am currently feeling slightly rubbish and am typing this with the coldest fingers ever, but bet your bottom dollar when I do start to thaw out I will be so hot I think I am going to explode. I try to dress in layers so that I can ditch some clothes when I feel it coming on.......otherwise it is b......y uncomfortable. I am not like this all the time, think it is just when I start/during a flare up. I have passed the menopause so I know that it is not related to that. I did mention this to my Rheumatologist and he, bless him, says that there are so many symptoms related to these type of conditions everbody is slightly different.....no magic wand!!!!

    Chin up...while everybody else is cold you will be hot just for a little while!!!!!

  • Buster01
    Buster01 missy1975

    Posted

    i feel for you love cos i get the same, not been to bad recently, was a time when i couldnt cook a meal because the heat from cooking would make me flare up, i'd come out of the kitchen and freeze, or my body could'nt stand the heating on in the house even tho i needed it on cos i was cold.clothes would go on then come off its a b*stard i know. what i get a lot of at mo is the red hot face and cold in the body.Do you get problems with the nerves tingerling in your hands arms feet and legs, this is driving me up the wall at the moment, soon as i try and relax off it goes, keeps me awake at night most nights.would be nice to be normal would'nt it.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.