Posted , 18 users are following.
I lost my spleen due to a colonscopy where my spleen was ruptured. I feel it has unfortunately changed my life in a negative way. I now live with anxiety, always worrying if a slight chill, a tooth ache, a slight cold, a headache, will it end up becoming an OPSI . I no longer own pets due to the chance of getting bitten or scratched and developing sepsis. I no longer garden due to histoplasmosis. I no longer hike in woods due to ticks and babeosis. I no longer enjoy travel, staying at hotels, are they clean? My hands are red from washing them. Going to the dentist and taking antibiotics to get my teeth cleaned and wondering if I will end up in the hospital, No longer can get facial injections or botox (advised against it due to no spleen). Told to avoid salons to get my nails done due to potential of infection. Told to avoid public swimming pools due to germs. Told to avoid the beach due to birds droppings. Told to wear long sleeves and tick repellant in the summer, socks on the grass, avoid eating from buffets or picnics where the food may harbor bacteria if sitting too long. No longer go to friends homes who have dogs or cats because a lick from one on an open wound may cause sepsis. Every doctor procedure now is an issue. Do I need antibiotics to see an ENT? if so for how long (I have colitis and antibiotics are not so good when you have colitis. I have a rare disease called Lyp and need biopsies once in awhile but now that is an issue of what antibiotic and how long. told to avoid crowds. ALLL THE THINGS I LIKED TO DO, THE BEACH, LONG WALKS IN THE DOG PARK, DOGS AND PUPPIES KISSING AND PlAYING WITH YOU, GARDENING, ALL GONE. Am I the only one here whose life has been severely altered? Am I the only one living with anxiety. I feel I am one step away from a deadly bacteria. The vaccines do not work as well in asplenia patients as healthy people so not really reassuring. I am finding it hard to adjust and to be honest, a lot of docs and dentists not really knowledgeable about how to protect asplenia patients. Maybe it is because there really is no way to increase our immunity and that is difficult for me to deal with.
2 likes, 18 replies