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Hey all! I'm 16 (from Australia) and really hoping to find people that understands what I'm going through and hopefully can offer some advice or opinions.
I'm really sorry for the long post... But there's so much more ..then this, so I tried really hard to shorten it. I feel like I just need to get all of this out there.
I am currently in the process of a CFS diagnosis, and although I have not been diagnosed as of yet, I am at crises point. I have a specialist appointment in over a months time (it was a 3 month wait); and I will be 17 at that time (the day after my birthday) I would like to know what others think, if I have it or not judging by your knowledge and experience, or if it could be something else...
As much as I hope that CFS is not the reason (my older sister was diagnosed over 2 years ago in year 12, so I am aware of the struggles that accompany CFS) for all this, I really need answers. I know that until my specialists appt. not much can be done for the documentation side of things for school etc. but the fear of the unknown is becoming really distressing. I need to know that what's happening to me is not in my head, I need some form of confirmation, anything that will put me at ease for the coming month...
Middle of last year I became unwell after a few things had happened in my life. Ever since then I've slowly gotten worse. I was 15 then, healthy, active and doing really well at school. I thought that what I was experiencing was what everyone else around was going through as well, and I was just 'weak'. It's so common for teens to complain of being tired and unmotivated. But days would become and still are unbearable, with overwhelming fatigue , muscle soreness, brain fog, and headaches. I also suffer from really bad nausea, diarrhoea and much more.
I didn't mention anything to anyone, not even my family as I thought that if I just got myself in a routine I would begin to get better. I felt like I could handle it and didn't need any help. But the major thing was that I thought myself to be too weak for simply not being able to overcome all this and that it was all in my head. I thought that I just needed more sleep. But mo matter how much sleep I got, I was still overwhelming tired and I began to feel frustrated with myself.
I've played basketball for over 6 years, and as much as I enjoy it, I resent it for the way it makes feel following the days and even weeks afterwards. Things were getting tougher in April this year. My breaking point was going back to school and basketball again after 2 week school holiday. I had an extended day at school and an intensely hard training session where I pushed myself to far. Everything just came at once. I had been feeling this way, and was getting worse for so long. I've never been "sick" in my life, and hadn't been to the doctors in years. I was at a complete loss of what to do.
Since April I have been to 6 different doctors (at the same clinic). The first two appointments I was so out of it, and couldn't communicate my symptoms and the history. The third, I decided to bring a list, however without any discussion, the doctor had already diagnosed me as depressed with mild anxiety, ignoring most of the symptoms and only taking those that fell in that profile. This made me second guess myself, maybe it is in my head.
At my fourth appointment, I finally felt like someone was understanding me. She actually asked questions, and believed me that it wasn't a 'mood thing'. She ordered many tests, such as rheumatoid arthritis, celiac and many more, all with a negative result.
The fifth doctor decided that antidepressants might be helpful. But nothing was getting any better. Finally the sixth... At the time I wouldn't have thought this, but the wait was worth it. He understood to a degree how much this was really starting to drag me down. I had had over 2 weeks off in the span of 8 weeks whilst at school. Following discussion, he suggested that we increase my dosage to try and rule it out as a way to manage my symptoms and he would also refer to a CFS specialist. Finally something more long term was being done.
I'm still slowly getting worse, as the demand of school and sport constantly make me have crushes. School is getting really hard. But nothing can be done officially until I'm diagnosed. Weekends are no longer enough time to recover. I come home from school exhausted, nap until evening, attempt homework that doesn't get me anywhere.
I'm in a really crucial year at school, and unfortunately I have taken on extra subjects, doing more than most of my peers, but also doing 2 year 12 subjects whilst everyone in my year are doing only one. Don't get me wrong, I enjoy school so much, and am doing really well. I wish so badly that I'm not sick so that I could do as well as I know that I am capable of. But I'm not sure how much longer I can continue this pace.
I want to study medicine once out of high school, but I'm not sure what I should be thinking about regarding my future. It seems like all my dreams and aspirations are slowing slipping out of my reach.
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