At last an answer!
Posted , 6 users are following.
Hello all. I am from the US and was diagnosed with lichen planus a year and a half ago. I had it all over my legs, arms, stomach, and back. No oral issues. After 6 months of pain, discomfort, and only wanting to wear long pants and long sleeve shirts, I decided to get an opinion from another doctor. All my dermatologist offered was different (and expensive) steroids and light therapy, neither worked. I tried gluten free, a diet change, new vitamins. Nothing worked.
The new doctor transformed my life. I have not had a flare up in a year. My skin is healing and all that is left is some marks that will eventually fade. He put me on a trial of low dose naltrexone. In its normal quantity it is for substance abuse issues, however in the low dose they are finding it helps with autoimmune issues. I was the first patient he had to have lichen planus however, he has used it to treat similar conditions. It has very limited side effects and no long term side effects so we gave it a shot. I am happy to say it is cheap ($25 a month) and very effective! I have no side effects and could not be happier that I've been free of lichen planus for a year. I take it at night as I was told by my Dr. that is more effective at night. I would research it a little and bring it up to your doctor as an option. I hope this helps someone in in someway! I can sympathize with how terrible lichen planus is to deal with.
1 like, 4 replies
kristyk amonte
Posted
God Bless You
Kristy k
kathryn07219 amonte
Posted
Sasr24 amonte
Posted
debbie01702 amonte
Posted
Dear Amonte, it's amazing to hear that somebody has had such a great response to a medication. I will ask one of my doctors for this drug. I have Planus on my back, hips, underarms, neck, vagina, anus and through out my mouth and lips. My eyes even hurt. I'm drooling. I feel like it's never going to get better. But thanks to you I have something to suggest to my doc. Thanks Amonte!