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I'm an 11.5 year PHN survivor with shingles covering the top of my head & down right side of my face stopping just short of the tip of my nose (fortunately otherwise it would have affected the optic nerve. I spent 7 days in Sydney Hospital on an acyclovir drip 3 times daily. It did no good.
My pain control consisted of 300mg of Neurontin 3 times daily. It made life bearable and stopped me ripping my eye out.This did me well till 3 years ago when I had a trapped nerve in my lower spine. 8 panadene forte daily for 2 months just was not acceptable.
So when my GP returned from holidays he took control saying we were dealing with nerve pain again (surprise) and doubled my Neurontin to 1800 mg daily. No change...so we went to 2700mg daily. No change....so up again to 3600 mg daily and then i could be pain free & walk again but have no feeling down left side of right leg.
Mental confusing was side effect, consulted pain clinic who recommended gradual reduction. Pleased to say I have reduced the Neurontin to 1800mg daily and I just cope with that. It's still a pain in the head.
Sorry for waffling. Cheers
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