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My symtoms started three years ago swelling stiffnes and spread from joint to joint. I initially saw a rheumatologist privately who did scans and diagnoised me with sero negative RA. I was on and off steriods when my problems began due to late onset asthma and am still on steriods today.
I had problems with methotrexate awful side effects and also leflunimde. I tried enbrel but after one shot I got infection after infection. I was referred to more of a specialist hospital who then decided after one ultrascan of my hands I do not have arthritis but fibromyalgia.
I felt this wasn't the case and also I did not meet the criteria for this condition. Due to the conflicting diagnoises I seeked a third who I am currently under now. The consultant is lovely and has said its not fibro alone that is there for sure something going on and I do not have the typical fibro symptoms. I had an ultrascan which should some synovitis in my hands and wrists. My bloods are normal and this has been blamed on my steriods.
I had an apt yesterday for follow up which wasn't with my usual consultant it was his registrar. I was prescribed sulfasalazine booked follow Up apts for bloods and for nurse etc And disgnoised again with sero negative R/A. An hour and a half later I was called by the hospital who said they have changed their mind and feel they need a clearer diagnoises before starting treatment and how aggressive they need to be or if it may be pain from fibromyalgia. They want to re do the ultrascan and then do a follow up. I feel so messed around and yet again another kick in the teeth. It's my life which is on hold and I'm loosing faith. I don't see the point in re doing the ultrascan as his registrar said its likely the steriods are dampening the inflammation down. I just really don't know what to do next ..... Feeling like I'm getting fobbed off by the doctors once again.
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