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at my wits end - IBD??

Posted , 9 users are following.

maria61651
maria61651

My son who is 29 has had his fourth bout of severe abdominal pain (so bad he has to be hospitalised and put on Morphine for ten days at a time). He has severe headaches and gets sick when he eats. The first three times he was hospitalised after nine days he got better. He has about six to eight months when he is fine and then it returns. This last time he has not got better. He has had MRIs, CT Scans, colonoscopy, endoscopy etc etc. Only one test showed inflammation of his large intestine. The hospital cannot diagnose. He has lost two stone in weight (probably because when he eats he feels worse). It is now causing him to feel very depressed as he feels the doctors can't help. Anyone had anything similar?

0 likes, 7 replies

7 Replies

  • craig84609
    craig84609 maria61651

    Posted

    It could be IBD, but it is hard to diagnose as they need to catch the inflammation to take a biopsy of it. It took years for them to find out that I had it and when I flare up, the pain can get so bad that I need to go to the hospital. Last night in fact I had a bout of severe pain. The pain is super bad and then I start to throw up. Having IBD is really rough on a person. I hope they figure it out soon, but if an x-ray showed his colon to be inflammed I would think that should be enough to diagnose IBD, but they still like to have a biopsy and even that can't totally be right. I was diagnosed as having Ulcerative colitis, but now I am having issues that point to Crohn's Disease. I am sorry that he has to go through this. I wish you all luck at getting a diagnosis and the proper treatment for what they figure out.

  • atram
    atram maria61651

    Posted

    Research Acute Intermittent Porphyria and see if his symptoms are similar. It's a rare condition that's often overlooked

  • hope_40919
    hope_40919 maria61651

    Posted

    Has he been tested for Addison's disease? It is an incredibly rare disease, which requires a very specific blood test to uncover.

  • pippa58442
    pippa58442 maria61651

    Posted

    Has your son tried a food diary to see which foods may trigger pain?
  • rihanna52936
    rihanna52936 maria61651

    Posted

    If doctors are not able to help, try naturopath from India. I got healed by naturopath I was diagnosed as PI IBS.
  • charlotte_95442
    charlotte_95442 maria61651

    Posted

    He sounds similar to me although he seems worse. I get terrible stomach that comes on and then disappears for months at a time. Does he get it more on one side? With the feeling sick after he eats that's the same as me and the doctors think it's GERD and I am on Omeprazole which you take to line the stomach before you eat. Maybe look into that for the sickness and see if he can be put on acid suppressors?

  • brandyy530
    brandyy530 maria61651

    Posted

    I have ibd mines never gotten too out of hand but i can tell you the pain is just horrible specially in the morning what i do is smoke weed i know my suggestion may not seem appropriate to you but it helps me when i just cant take the pain anymore and i would definetly recommend to try a harmless plant before you give your son a real drug
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