At the end of my rope & tired of the Dr. brushing me off. Could this be fibromyalgia?

Hi

I can totally relate to everything you've said. I have exactly the same symptoms as you, and I'm also in my early 20's. My dr hasn't mentioned fibro to me though, I came across this forum when looking for answers to my symptoms. 

The only thing that has come up with me is the low vit D, but surely that can't cause all these symptoms? It's so frustrating isn't it. I stopped taking the vitamin supplements as they didn't seem to be helping at all, but I've just been re-tested and I'm even more defficient so starting the tablets again tomorrow. Do you know what level your vit D is?

I'm gonna mention fibro to my dr tomorrow and see what he thinks. 

I hope you get some answers, try and stay positive

hi Erin, get yiur doctor to make an appointment with pain clinic, it will take a while but they will sort you out, be patient and do not pay attention to what others think or say about you as it is none of their business. F/M is now recognised by the DLA as a disability so it is not in your mind. best wishes James

Hey Erin, sorry to hear you're feeling so bad. I'm new on the forum as of today and was only diagnosed a fortnight ago. When I read your post I had to reply as I know exactly how you're feeling.  I have been struggling for the last 4 1/2 years, so  I can relate. Most of the symptoms you mention in your post are familiar to me, the aches and fever, bouts of it as you call them. I also felt like I was going mad! I very rarely have a good day but some days and weeks can be worse than others. My bloods have always been normal and I too have had low vit D, vitamin supplement didn't make any difference either. I eventually asked to see a consultant and asked for a referral. I paid   To be seen privately only to bring forward some answers. I've recently been in exactly the same boat round about May this year and asked my GP to refer me. Keep a diary of your symptoms to take along with you to the consultant appointment. You know your own body best and if your feeling unwell then of course you want answers. It may or may not be Fibromyalgia but if your GP has mentioned it then there shouldn't be too much trouble asking him to refer you so it can be looked into properly. In the meantime look after yourself, try not to read tooooo much online, it can be overwhelming and make another appointment with the same GP. I'd also ask for help with the symptoms.when u see him/her. It's horrible feeling down but try to be positive and be good to yourself.  Let us know how you get on.

You are SO not alone!

Rheumatologists generally treat fibro. Pain clinics too, but some pain docs won't acknowledge fibro.

Look up natural ways to help your symptoms. It'll also give you SOME control over it. You'd be surprised what can help.

They have places online where you can order your own hair test to see what you're deficient in. Or if you can afford it, a naturopath. Functional Bio analysis is AWESOME!

Hi, the symptoms you listed are very common to Fibromyalgia but something you haven't mentioned is the delayed malaise feeling which I believe is one of the key things to the condition.  When you've done something physically demanding which you don't always do, do you suffer worse syptoms than normal 24 / 48 hours later?

My personal experience at a Pain Clinic was useless except when I mentioned one of my symptoms the Pain Clinic specialist looked at me strangely, but didn't say anything.  I then went away and after a few months remembered that strange look and started internet searching.  The search then lead me onto diagnosing and having it confirmed by the Rhumotoligist (sorry spelt wrong) that I do have Fibromylagia.  This has then lead on to meing also being diagnosed with ME/CFS. 

If you have the delayed malaise definately bring it up again with your Dr and asked to be referred to see a Rhumotolist for diagnosis.  You will also need to achieve over 10 (I think) of the pain points - research on the internet will show you where they are.  Good Luckx

Hi Erin,

I havent got fibro....I do have Osteo arthritis, Kypho scoliosis, Spinal stenosis, Osteoporosis etc 

My {then } GP did exactly the same with me when I went to him with a pain in the top of my leg.......after saying....."cant find anything worong" and that was that {quite a few times} I said I would like a referral to the hospital please. He gave me a referral, they sent me for a X Ray and when I came back to his office after it he looked at me and said you need 2 new hips  Wheras the GP said nothing wrong !!!

If you havent been to the hospital ask your GP for a referral and see what they say then take it from there.......at least then you will know what you are coping with

Good Luck

Love

Eileen  UK

Hi

One other thing

I've been reading that people are saying keep a diary.....great idea but

When you do get an appointment with someone....consultant pain clinic whoever make a load of notes and questions to ask him

Most of us go in to a hospital appointment and if we dont have notes we come out thinking "Why didnt I ask that??????"

Its also a help to have someone with you.......to remember all that he said

You might be so busy asking questions that you dont remember all he said

My husband comes with me as my memory

If you have no one to go with you take your mobile and ask the consultant if you can record the appointment.....most of them say yes......then you will have something to look back on.

Love]Eileen  UK