At the end of my rope & tired of the Dr. brushing me off. Could this be fibromyalgia?

Posted , 7 users are following.

Hi. I'm hoping someone here can give me some advice or at least have some insight to what could be going on. I have had these symptoms for years, but its getting worse...

Horrible muscle aches, joint pain, fatigue, chills (feels like I have a fever but I dont,) anxiety, inability to concentrate., horrible lower back pain, headaches, sore throat, sore under my arms ( I think it's my glands), rib pain (if I barely get poked in the ribs it hurts horribly). The aches and chills feel just like I'm coming down with the flu, but I never do.

Some days are worse than others. Somedays I feel OK, some day a I feel awful. I have many of these symptoms on a daily basis, but some of them hit me in "bouts". I'll feel horribly achy and feverish for a few days, then it will get better. Then it will come back a couple weeks later, so on and so forth.

I'm only in my 20s and shouldn't feel this bad. All lab tests have come back normal except low vitamin d, but even when I take a vitamin d supplement, my symptoms don't go away. Last week my Dr mentioned fibromyalgia, but never followed through with anything. People think I'm faking it or that I'm a hypochondriac, but I'm not making this up. Im at the end of my rope and I feel desperate.

Does this sound like fibromyalgia? Can anyone give me any advice?

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13 Replies

  • Posted

    Hi

    I can totally relate to everything you've said. I have exactly the same symptoms as you, and I'm also in my early 20's. My dr hasn't mentioned fibro to me though, I came across this forum when looking for answers to my symptoms. 

    The only thing that has come up with me is the low vit D, but surely that can't cause all these symptoms? It's so frustrating isn't it. I stopped taking the vitamin supplements as they didn't seem to be helping at all, but I've just been re-tested and I'm even more defficient so starting the tablets again tomorrow. Do you know what level your vit D is?

    I'm gonna mention fibro to my dr tomorrow and see what he thinks. 

    I hope you get some answers, try and stay positivesmile

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    • Posted

      Hi! No I don't know how low my vitamin d is, I'm going to get them to fax my lab work tomorrow. Im so glad someone relates! It is so frustrating to feel so bad at 23 years of age! Ugh. Good luck at your doctors apt. I hope u get some answers! 

       

       And no, I don't think the vitamin d thing would cause all this. I mean, I'm no doctor, but from my experience, there has to be something else going g on. I went to the Dr for these symptoms over a year ago, my vitamin d was low then too. I took a supplement but it didn't help. Its like last year is repeating itself all over again

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  • Posted

    hi Erin, get yiur doctor to make an appointment with pain clinic, it will take a while but they will sort you out, be patient and do not pay attention to what others think or say about you as it is none of their business. F/M is now recognised by the DLA as a disability so it is not in your mind. best wishes James
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  • Posted

    Hey Erin, sorry to hear you're feeling so bad. I'm new on the forum as of today and was only diagnosed a fortnight ago. When I read your post I had to reply as I know exactly how you're feeling.  I have been struggling for the last 4 1/2 years, so  I can relate. Most of the symptoms you mention in your post are familiar to me, the aches and fever, bouts of it as you call them. I also felt like I was going mad! I very rarely have a good day but some days and weeks can be worse than others. My bloods have always been normal and I too have had low vit D, vitamin supplement didn't make any difference either. I eventually asked to see a consultant and asked for a referral. I paid   To be seen privately only to bring forward some answers. I've recently been in exactly the same boat round about May this year and asked my GP to refer me. Keep a diary of your symptoms to take along with you to the consultant appointment. You know your own body best and if your feeling unwell then of course you want answers. It may or may not be Fibromyalgia but if your GP has mentioned it then there shouldn't be too much trouble asking him to refer you so it can be looked into properly. In the meantime look after yourself, try not to read tooooo much online, it can be overwhelming and make another appointment with the same GP. I'd also ask for help with the symptoms.when u see him/her. It's horrible feeling down but try to be positive and be good to yourself.  Let us know how you get on.
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    • Posted

      hi all,

                Keeping a diary is a very good point as with everything that goes on with F/M it is impossible to remember, write everything down no matter how daft it may seem. The plus point for this is it also helps you to manage your symptoms better symptoms is easy to disregard but if you write them down it shows you have acknowleege them.

      best wishes james

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    • Posted

      Good morning all, yep the diary helped, you can see for yourself which symptoms are the ones that around all the time and other symptoms that pop up occasionally and of course the daft ones. I didn't know the itching was down to the fibromyalgia, I thought menopause! Initially I thought it was a reaction to something I'd eaten/allergy, I was wrong! Include everything, it might mean something to doc and could be important in diagnosing. 
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  • Posted

    You are SO not alone!

    Rheumatologists generally treat fibro. Pain clinics too, but some pain docs won't acknowledge fibro.

    Look up natural ways to help your symptoms. It'll also give you SOME control over it. You'd be surprised what can help.

    They have places online where you can order your own hair test to see what you're deficient in. Or if you can afford it, a naturopath. Functional Bio analysis is AWESOME!

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  • Posted

    Hi, the symptoms you listed are very common to Fibromyalgia but something you haven't mentioned is the delayed malaise feeling which I believe is one of the key things to the condition.  When you've done something physically demanding which you don't always do, do you suffer worse syptoms than normal 24 / 48 hours later?

    My personal experience at a Pain Clinic was useless except when I mentioned one of my symptoms the Pain Clinic specialist looked at me strangely, but didn't say anything.  I then went away and after a few months remembered that strange look and started internet searching.  The search then lead me onto diagnosing and having it confirmed by the Rhumotoligist (sorry spelt wrong) that I do have Fibromylagia.  This has then lead on to meing also being diagnosed with ME/CFS. 

    If you have the delayed malaise definately bring it up again with your Dr and asked to be referred to see a Rhumotolist for diagnosis.  You will also need to achieve over 10 (I think) of the pain points - research on the internet will show you where they are.  Good Luckx

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  • Posted

    Hi Erin,

    I havent got fibro....I do have Osteo arthritis, Kypho scoliosis, Spinal stenosis, Osteoporosis etc  cheesygrin

    My {then } GP did exactly the same with me when I went to him with a pain in the top of my leg.......after saying....."cant find anything worong" and that was that {quite a few times} I said I would like a referral to the hospital please. He gave me a referral, they sent me for a X Ray and when I came back to his office after it he looked at me and said you need 2 new hipseek  Wheras the GP said nothing wrong !!!

    If you havent been to the hospital ask your GP for a referral and see what they say then take it from there.......at least then you will know what you are coping with

    Good Luck

    Love

    Eileen  UK

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  • Posted

    Hi

    One other thing

    I've been reading that people are saying keep a diary.....great idea but

    When you do get an appointment with someone....consultant pain clinic whoever make a load of notes and questions to ask him

    Most of us go in to a hospital appointment and if we dont have notes we come out thinking "Why didnt I ask that??????"

    Its also a help to have someone with you.......to remember all that he said

    You might be so busy asking questions that you dont remember all he said

    My husband comes with me as my memorycheesygrin

    If you have no one to go with you take your mobile and ask the consultant if you can record the appointment.....most of them say yes......then you will have something to look back on.

    Love]Eileen  UK

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    • Posted

      Hi Eileen, 

      I'm definitely gonna start taking the supplements again. I just wish they would prescribe a proper dosage. 800iu just isn't enough from what I've read, but I guess it's better than nothing. 

      I saw my doctor on Friday, he prescribed me some pain killers. Naproxen I think they're called. I have another appointment in a fortnight and he's going to refer me to a pain specialist at the hospital. I'll definitely follow advice and take notes etc.

      I feel absolutely dreadful today. Started with a sore throat yesterday, my whole body is aching. sad

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    • Posted

      Hi  Lucy

      Naproxen isnt bad......doesnt get rid of the pain completely but what does.

      I always think there is no such thing as a pain killer.....it a pain dullercheesygrin

      Naproxen is an anti inflammatory.  I take it and every now and again try to miss a dose thinking its not ddoing any good......but I soon realise it must be because I'm so sore the next day

      Love

      Eileen  UK

       

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