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My 17 year old daughter has suffered more than 35 posterior locations of her right shoulder in the last 60 days. We've seen 5 orthopedic specialists, who say they have nothing they can do to help her. The last has referred us to a geneticist, as all suspect Ehlers-Danlos. My question is, even with an EDS diagnosis, what can be done to help her shoulder. We tried physical therapy, but they were unable to help her do even minimal isometric exercises. Every doctor we have seen has pretty much washed their hands of us. Right now, our local hospital won't even put her shoulder back in, because it will just "fall" out in 6 or 7 hours, even wearing an immobilizer. They tell me there is nothing wrong with the shoulder structure itself, it's the soft tissues that are too loose to work with. So, how do we proceed? If they can't operate and she can't tolerate PT, will she always have a dislocated shoulder? Any words of experience?
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