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Atypical facial pain

Posted , 2 users are following.

lisa66732
lisa66732

Hi I have been told I have atypical facial pain, I thought I had sinus blockage but Now been told they are clear. I don't know a lot about this condition. I have symptoms of sinus infection , shooting pains through my nose, eyes swollen and headaches. Also get pain in ears. My forehead feels tensed. I have been reading and my symptoms don't sound the same as other people, I don't have any tooth pain. I have also read that it's psychological is it? I have been put on amytripteline and booked to go see a neurologist, what would the neurologist do?  Is this a bad ongoing condition ?? Help please , need to understand what is wrong with me 

0 likes, 10 replies

10 Replies

  • marshall71
    marshall71 lisa66732

    Posted

    What dose are you on ?

    I've been on amitriptyline since last May 30-40 mg per night I get ringing in ears all the time at night it's awful.

    What you have is nerve pain Neuropathic

    Pain ( neuralgia ) which comes from the Nerves in your face you said your seeing a neurologist will do test on your body

    It may be all in your head but they will conduct test to rule out other conditions you May have

  • lisa66732
    lisa66732

    Posted

    Hi thanks for your reply, I am on 10mg as only just started. What does it mean all in your head?? Do they mean I'm imagining this because Im definitely not. Do you have the same type as what they say I have. What tests have you had done??
  • marshall71
    marshall71 lisa66732

    Posted

    Sorry I mean the gps or specialist may think it's all in your head I've had numbness in my right side of my face mine now has gone down to my legs feet and toes toal numb when I sit down or lay down it all started in my back and moved down my legs had MRI scan got DDD degenerative disc disease si joint sl5.

    I know it's not the same as what you are stuffing from but numbness is always a worry as it could be a number of illness

  • lisa66732
    lisa66732

    Posted

    You sound like your symptoms are a lot worse than mine, you poor thing. I Just hope that's not what they think as I am actually starting to get fed up, I have asked the doctor to call me tomorrow to explain in more detail and hopefully I will be able to sleep better. Hmmmm I wonder what test they will do, thankyou for your info, very informative . Does the amytripteline help you???
    • marshall71
      marshall71 lisa66732

      Posted

      Thank you

      Amitriplyine has been the only drug that has helped with the pain I can now sleep before I was not getting sleep at all I started like you at 10mg Then went up 30-40 mg plus tramadol.

      I read some info into what you have seems not much on the internet about it yes I would ask the GP to explain everything too you another thing I can cut my toes nails and not feel anything in toes I'm seeing another specialist this has been going on since nov 2014 all started in my ribs

      Ask what test the specialist will do to put your mind at ease I know it's a massive worry as it is get me down but it will not beat me

  • lisa66732
    lisa66732

    Posted

    Oh dear I feel bad for you. I will see what the doc says , it's nice to talk to someone about this, keep in touch x
    • marshall71
      marshall71 lisa66732

      Posted

      Yea please let me know who you get on been nice chatting sleep well x
    • marshall71
      marshall71 lisa66732

      Posted

      How are you getting on with the amitriptyline has it got better ?
  • lisa66732
    lisa66732

    Posted

    Hi 😊, each day seems a little better with the symptoms but still have the pain. Doctor waS supposed to ring Tuesday but hasnt😡 I will have to call them again. How are you??
  • marshall71
    marshall71 lisa66732

    Posted

    Takes between 4-6 weeks for full effect for the drug to work

    Flair up this week full on pain from back which makes things worse for me too on top of the numbness I'm using a tens machine on full power it's like having a electric shock lol

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