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For the past 18 months, I've had pain and small nerve shocks in my face and head. GP and Neurologist has confirmed I have Atypical TN, bilateral. For the past few months, it's been bubbling away in the background, enough for me to be aware of it but the pain has been bearable and I did get the odd respite day where I felt almost human again.
However the past 3 - 4 weeks it has ramped up and it's now pretty awful. Burning, aching, electric shocks in both sides of my face and all over my head. I'm on anticonvulsants but I wondered if anyone could advise of any coping mechanisms to keep me positive through all this!
I've been going to Yoga class but unfortunately I think I will have to give this up. The pressure in my face is horrendous when I do various moves eg downward dog and cats pose. It's too painful to do those and I wonder if I'm making the pain worse by doing those stretches? So, has anyone got any tips to try, which helps mentally as well as physically? My GP is actually doing her best to help me but I guess you have to live with it to understand just how awful this disease really is.
Thank you in advance everyone X
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