Autoimmune Hepatitis
Posted , 3 users are following.
Anyone has this diagnosis
0 likes, 1 reply
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Notes on Autoimmune Hepatitis
kirsty48154 Canessa2207
Posted
Yes had 3 attacks approximately 12 years ago and was diagnosed with AIH 10 years ago. Have never felt so I'll in my life however once treatment started and everything settled down I remained on mercaptopurine 50mg for last 7 years - worked full time, brought mykuds up (one if whom has autoimmune kidney disease and had a transplant from her dad in Nov 2015 both doing well) In Nov 2017 the powers that be decided to stop treatment and i began to feel unwell by Christmas time but just ignored it all and got on with life suffice to say 10 days ago my ALT shot through the roof and I feel awful - I am signed off work and an operation to remove a complex ovarian cyst which may be cancerous has had to be postponed until liver recovers. I do know that once everything settles and I also get op that my life will be fine - I will have energy, can socialise again and get back to work. At moment I am itchy, exhausted, nauseous, hot feet and hands, sensitive skin and severe hip pain either from cyst or AIH its hard to tell and unable to sleep due to the prednisilone but i know that this is just a dot in time and everything is going to be fine . I turned 50 last week and was dreading it but felt 80 on the day so looking forward to feeling 50 xx