Autoimmune mystery
Posted , 2 users are following.
Hello all,
I write to you all for some hope.
I am a 26 year-old female. About 8 years ago I started to develop some photosensitivity. When I am in the sun for over 10 minutes (even through my car window) I break out in very itchy red little bumps on my arms, chest, stomach and legs. I then had a significant pain in my right side, all my tests came up normal for years, except finding a hiatal hernia. Eventually, they removed my gallbladder and found it was significantly scarred. Shortly after, I developed severe gastroparesis. I have mild joint swelling, a muscle weakness. I cannot exercise without feeling like I am going to pass out. I have also not had a menstrual cycle in 2 years.
I have had a lot of blood work, resulting in a positive ana level of 1:640 and I had a homogenous and speckled pattern. All other blood work has been normal. I was tested for lupus, polymyositis, CREST and scleroderma. Everything has been negative.
I have gone to multiple MDs and they do not know what is wrong with me.
I am just giving up hope that I will find a diagnosis, but this is really starting to impact my life.
Thank you in advanced for reading!
0 likes, 1 reply
Guest miranda27953
Posted
You might look into CIRS or lyme disease. They both have the symptoms you describe and do not show on normal blood work.