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Autoimmune Disorders

Also known as Antiphospholipid Syndrome, Behcet's Disease, Dermatomyositis, Goodpasture's Syndrome, Lambert-Eaton Myasthenic Syndrome, Retroperitoneal Fibrosis, Sclerodoma/Systemic Sclerosis

All discussions in this group

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  • Mystery condition Nerves? Autoimmune?

    Hi Everyone I'm pretty desperate so I’m looking for anyone who can identify with or help get to the bottom of what is happening to me. Be prepared it's a long complicated story. I realise that a lot of these symptoms can be attributed to depression or anxiety but after 8 months of Psychotherapy,...

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  • Is this Lupus?!?!

    Hi, I have been diagnosed as having Sjogrens as well as unspecified other autoimmune disease(s) I have all symptoms of Lupus, my doctor keeps checking my blood for Lupus (so far negative) but he does feel I may develop it in the near future. I wrote into another forum (and a doc emailed me back) I wanted...

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  • Newly diagnosed

    Hi. Am so pleased to have found this sight. I have just been diagnosed with limited scleroderma and at a loss as to what this condition is all about. I have severe raynauds,fingers and toes with tight skin, have the antibody centromere and have recently had carpel tunnel op on both wrists and fusion...

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  • Husband distancing himself from me, what can I do?

    I'm not officially diagnosed yet, but with all my symptoms it's looking like I have Lupus. I'm getting worse all the time and am praying for a cancellation so I don't have to wait 2 1/2 months to see my doctor. In the meantime I feel like my husband is distancing himself from me. I don't...

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  • Am I positive. Unsure of test result. Haven't heard from Dr yet

    I am a 47 year old female who has had upper abdominal pain only by standing walking and physical activity. Also I never feel well. Chronically tired all muscles hurt, weakness and head fog. I've had many test even exploritor surgery which only showed multipal begin lymph nodes to my mesentery. ...

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  • Behcet's syndrome or genital herpes?

    Hi,  I've had quite an experience in the past week. Let me start off by saying please don't just automatically assume I must have herpes before hearing my whole story (as basically everyone has tried to do).  I'm a 22 y/o female. For the past 3 or 4 years, I have suffered pretty...

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  • Dapsone

    Hello everyone. I have been on 50mg of Dapsone a day since January. I seem to be getting increasing pins and needles, ringing in the ears, palpitations and breathlessness. I have regular blood tests for liver function which are showing no problems so I am not sure Dapsone is the cause of my symptoms....

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  • Widespread muscle pain and fatigue

    I am a single dad of three so my limited resources have prevented me from spending the money to pursue a formal diagnosis. My doctor has been telling me that he believes that I have a mitochondrial disorder and I have been dealing with neurological, and muscle problems problems for 3-4 years now. For...

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  • Fatigue crashes

    Hi just wondering how many others who may have possible autoimmune issues suffer fatigue crashes? These are periods off fatigue above the normal where you feel the energy zapped from you. Like there is no more petrol in the tank. I'm unsure what's the cause of my debilitating fatigue crashes...

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  • Behcets possible without ulcers?

    Hi there. I have had a gp recently suggest a symptom I am having is "behcets syndrome or something similar". After reading about behcets, it sure seems like it would explain a lot of unexplained health issues I've had over the last ten years. The only thing I definitely don't deal...

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  • Something weird happened to me

    I posted this last night in neurology around 1 am but no answers.. Background: I have been sick since Oct 2016 with something like fibro like CFS like neuropathy like hashimotos, yet I dont have an exact answers. Regardless I have been having a hard time walking lately and balance issues and my depth...

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  • Dermatomyositis PSTD

    It's been about 3 years since i was diagnosed with dermatomyositis (a rare autoimmune immune disease centered around skin rashes and extreme body muscle pain) ... and it has caused me stress ever since them, because it was such a traumatic event. I live in the USA and so I am really fortunate to...

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  • Autoimmune disease

    I am new to this site. I am a 65 year old female and I learned I had autoimmune disease when I was 35. It started in my knees. Had to have them drained. Since then I have had dry eyes, all my bones hurt me, very fatigue. Just recently I'm getting weird feeling in my body of weekness. I'm on no...

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  • High thyroid per oxidase antibody levels

    hi I've been backwards and forwards to doctors and feared to several specialists as I've been in so much pain with muscles,back, neck problems and had pleurisy twice in the last few years and many many virus bugs etc. Felt like utter rubbish had chest pains hospital thought I was having a heart...

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  • High Rhematoid Factor of 26 ? Nerve Damage from Cellulitus ?

    Can any body help please ??? Had Cellulitus in Feb this year , really bad infection from suspected mosqitoe bites whilst on holiday in Goa India. Back/Forth to the GP with general feelings of not being well at all , also diagnosed with nose polyps in June, constant daily headaches,not sure if related...

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  • 11 weeks and still no answers. Opinions?

    Ok, so it seems to have started in my legs and back right about the same time (Kinda itchy then started burning)  The only way I can describe the pain is to say that it was like shingles on top of a horrible sunburn.  My clothes hurt to touch my skin, the fan hurt to blow on my back.  It...

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  • Behcets Disease?? Please Help!!

    Im a 21 year old female from the U.S that as recurrent genital bumps for around 7 years. Every few months they will crop up. I only get the occasional canker sore, but nothing i have noticed. Im a virgin, and ive been searching for a reason i might be getting these recurring sores. When i looked it up,...

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  • Some Help From Experienced Peoples

    Hello, Now i have been sick since december, and have all the doctors stunted. I started pooing my guts out, going 15+ times a day for a few months, lost a lot of weight and other things. We eventually established i was Fructose Malabsorpant. Which before then i have never been. We have been working...

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  • Strange last 8 months, need some guidance, please help!

    Hi everyone, I have had a really strange last 8 months or so with my health. I'm a 24 year old male who has never really had any health issues. I'm physically active and eat relatively healthy. Here's a timeline of my health recently. If anyone could point me in the right direction as to...

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  • Just Diagnosed with IgG4 Sclerosing Disease

    Hi Everyone I was just diagnosed about 5 weeks ago and my case is so complicated that it has taken more than 6 years to finally find this diagnosis. I am type 1 diabetic on an insulin pump and have many complications just as a result of that and can not take any type of steroids so my  rheumatologist...

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  • Autoimmune Hepatitis

    Started getting sick 2 months ago. My primary tells me I have hormone problems since I had back to back surgeries in 2016. After going to hospital for vomiting and dark orange urine I find out I have liver enzymes Alt is 1533 and Alt is over 1029. They did Ct scan and ultrasound and sent out blood work....

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  • Retroperitoneal Fibrosis Need help

    my father is suffering from retroperitoneal fibrosis. His mass was 160 into 80 into 42mm. he underwent surgery and the mass was reduced to 100 into 60into 20mm. he is on steroids for treatment. unfortunately, when he re scanned after 3 months, the mass has increased to the same size as it was before...

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  • Diagnosed

    Hello all. I have been diagnosed with Filaria igg4 ab elisa. Doing some research, it sounds gross. Does any one know what the treatment is for this? Doctors thought it was cancer at first. I had a swollen neck lymp node removed, and tested. I get tired very easily, and always cold, no matter how...

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  • Still have no idea what is going on..

    I got sick on Oct 5, 2016 what started out as uncontrolled vomiting, nausea, and upper abdominal pressure for two months, quickly turned into something worse. I got strange left sided body weakness, work out intolerance, hot flashes, extreme panic attacks, lost 25 pounds and haven't been able to...

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  • Constant numbness in face and severe pain

    Hello all, I'm in desperate need of some insight . I've been diagnosed with mctd, I am in constant pain, major stomach issues and insane numbness in the face and left side of arms, legs that comes and goes depending on how I'm feeling . Nausea and headaches that keep me in bed for days at...

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  • Autoimmune or not ?

    Uncertainty . I have been to a rheumatologist  twice. Just to feel slightly confused . My Condition seems to be prevalent in the winter. (Started last winter, summer came and went and I have virtually no pain) I Understand the concept of barometric pressure. And that this could possibly play a role...

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  • Confused about possible autoimmune?

    34 year old white male. 6" tall (182cm). 225 lbs (102kg).  Conditions: piriformis syndrome, asthma, bi lateral carpal tunnel. ANA Results : 1:160 speckled, 1:160 homogenous Up until 3 months ago I was in great physical shape. Went to gym almost every day. Weighed in at 205 lbs (93kg).  Felt...

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  • Autoimmune disorder causing my POTS?

    I'm going to warn you in advance that this is a long story and I suck at being brief, but I've been experiencing a number of very problematic symptoms for over a year and a half now that I STILL am trying to explain and figure out how to finally feel better. It's a long list of symptoms,...

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  • Complicated

    Hi, I'm going to try this again. I posted in the wrong group a few minutes ago. I have lupus and ITP (platelet disorder) along with a host of other issues. I'm tired of doctors dismissing me.

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  • Lambert-Eaton Myasthenic Syndrome

    I am really pleased to hear you are in remission and wish you all the best. I have been using 3,4DAP for about 5 years now and I find it really helps. I was taking 10mg every 4 hours for the first 2 years but now I take 10mg every 2hours. I think this is alot and I sometimes feel like if you shook...

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  • Seronegative Lupus???

    For the last 15 years i have experienced what started as muscle pain after walking around for over 40 minutes. It would gradually get to the point i had to sit down. Then followed with joint pain and swelling, initially just in my hands, now it pops up in basically every joint in my body. I also had...

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