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Autoimmune Disorders

New discussion Join group Also known as Antiphospholipid Syndrome, Behcet's Disease, Dermatomyositis, Goodpasture's Syndrome, Lambert-Eaton Myasthenic Syndrome, Retroperitoneal Fibrosis, Sclerodoma/Systemic Sclerosis

All discussions in this group

  • SLJoosten 2

    Autoimmune disorder causing my POTS?

    I'm going to warn you in advance that this is a long story and I suck at being brief, but I've been experiencing a number of very problematic symptoms for over a year and a half now that I STILL am trying to explain and figure out how to finally feel better. It's a long list of symptoms,...

    6 replies 0 votes Last reply
  • chubroc 2


    Hi, I'm going to try this again. I posted in the wrong group a few minutes ago. I have lupus and ITP (platelet disorder) along with a host of other issues. I'm tired of doctors dismissing me.

    2 replies 0 votes Last reply
  • Guest M

    Lambert-Eaton Myasthenic Syndrome

    I am really pleased to hear you are in remission and wish you all the best. I have been using 3,4DAP for about 5 years now and I find it really helps. I was taking 10mg every 4 hours for the first 2 years but now I take 10mg every 2hours. I think this is alot and I sometimes feel like if you shook...

    13 replies 0 votes Last reply
  • AnotherPatient 2

    Autoimmune or not ?

    Uncertainty . I have been to a rheumatologist  twice. Just to feel slightly confused . My Condition seems to be prevalent in the winter. (Started last winter, summer came and went and I have virtually no pain) I Understand the concept of barometric pressure. And that this could possibly play a role...

    1 reply 0 votes Last reply
  • grace05403 2

    Seronegative Lupus???

    For the last 15 years i have experienced what started as muscle pain after walking around for over 40 minutes. It would gradually get to the point i had to sit down. Then followed with joint pain and swelling, initially just in my hands, now it pops up in basically every joint in my body. I also had...

    1 reply 0 votes Last reply
  • tracy81975 2

    Confused about what might be wrong... possible systemic autoimmune

    Hi I'm new here and just looking for some understanding from anybody in a similar situation or has more experience than I do. my history is a little confusing with no real diagnosis off anything.... so far. I am a 38 year old female and for the past 3-4 year I have suffered fatigued a general feeling...

    6 replies 0 votes Last reply
  • Wanonymous 2

    What questions should I ask the doctor?

    Hiello, I have not been diagnosed with any disease, but doctor said an immune disease is possible. It's a difficult situation, and I was wondering what questions I should ask the doctor (I'm seeing another one) to get to the cause of my symptoms. Symptoms: fatigue, memory and concentration issues,...

    8 replies 0 votes Last reply
  • nicole20733 1

    Positive ANA test

    I had a positive ANA test...titre of 1:160 neculeor pattern. My doctor told me no further testing is required as that is a false positive and he then diagnosed me with fibromyalgia. I'm wondering if anyone has information that I should know. I keep reading that although that titre isn't really...

    1 reply 0 votes Last reply
  • maggi may 2

    i have sticky mouth

    does anyone know what i can do about  sticky dry mouth caused by bronchiectisis  its also giving me a tikle in my throat its so bad i have to force myself to clear my throat  but it comes straight back  also off my food  but dont feel ill any advice would be welcome thankyou...

    1 reply 0 votes Last reply
  • nicole55399 1

    Hair loss, achey joints, hives

    Hi! Long story short, I used to work on a cruise ship (hectic schedule) and one day I started feeling really sick. I felt achey in my lower back spine area and then my face got really itchy. It swelled up and I broke out in hives all over my body. I had a high fever. The doctors on board thought it was...

    4 replies 1 vote Last reply
  • jennylew1212 1

    Need help with fatigue

    Hi! I have been having aches in my joints and also in some muscles. A few months back I started getting aches in my ankles, the tops of my feet, knees, elbows and fingers. Sometimes my neck too. My left arm is giht and I get tingly feelings in two of my fingers. I get this in my feet randomly as well....

    2 replies 0 votes Last reply
  • nikki09956 2
  • Joe M.M. 1

    Just diagnosed with cutaneous lupus - need information

    Itchy rash all over body which began in February, 2017.  Dermatologist finally did biopsy and results came back LUPUS.  Other symptoms include stiff toes, debilitating fatigue and foggy brain.  Dermatologist odered additional blood tests to determine type of lupus.  I am an absolute...

    0 replies 0 votes Posted
  • lesley73855 2

    Connective tissue disorder

    Hi Hope someone out there can give me some advice. For the last 3 years I have been suffering from anal fistula. I have now been told by my gp that my esr , crp, uric acid levels are all high. He has said he is sure I have connective tissue disease due to all my joints from my toes to my neck are affected,...

    3 replies 1 vote Last reply
  • Sarah777jackson 1

    Autistic Son thickening Pericarditis and Positive ANAScreen

    My son is 22. He is autistic and unable to express symptoms or pain. I can tell when things are wrong so I took him to the hospital in December 2016 and the test results made it appear that he had a mild heart attack. They have ran a myriad of tests on him- blood tests, CT scan, echos, EKGs, stress test....

    0 replies 0 votes Posted
  • LukyBowler 1

    Constant skin issues and problems - please help.

    So a very long story short, about 6 months ago I noticed my skin started to itch all over.  After about 3 weeks of itching with no visible rash, i started to noticed red inflamed/infected hair follicles all over my inner thigh. None of them had pus in them, just a red ring around the follicle which...

    1 reply 0 votes Last reply
  • Kay0614 2

    Referral to rheumatologist, positive ANA what will happen next?

    Hi all New to this forum so any replies would be appreciated. I'll give a brief history of symptoms. 4 years ago Raynauds started, 3 years ago reaction to sunlight itchy red swollen rash on hands and top of feet ( arms legs, any where exposed to sunlight, never on my face). September 2016 pain began...

    0 replies 0 votes Posted
  • LeShawn 2

    IgG4 Disease? Just diagnosis, looking for information

    Hello!   Here is a little background after a little more than 5 years of various ailments, several biopsies one of which was removing a lymph gland from my neck my Doctor said I was negative for Sarcoidosis (that is initially what he thought I had). So sent me to see a Rheumatologist who ran more...

    11 replies 0 votes Last reply
  • haley18218 2

    Chronic Illness for a 1.5 years

    Hello, I am a 21 year old female and have been sick on and off for over a year now.  Starting spring of 2016, I would get random bouts of nausea and dizziness. I would sometimes feel brain fog as well.  These symptoms would come and go, sometimes together, sometimes not. Then in June 2016 i...

    3 replies 0 votes Last reply
  • Guest M
  • Ad-25 1

    Ill health termination or ill health retirement?

    I am currently on long term sick and am claiming esa support group and pip max benefit due to physical and mental problems caused by a neurological event. I am now being offered employment I'll health termination or ill health retirement or a career break but it is not know if my condition will...

    0 replies 0 votes Posted
  • heather18065 2

    Oral Lichen Planus

    Hi. I'm new to this site and wanting some advice please. I have 3 of the autoimmune disorders which are Thyroid, Vitiligo and Lichen Planus. I'm under the hospital yearly for Oral lichen planus but have suffered badly with it in the last few months with 4/5 days of very bad soreness so that it's...

    19 replies 0 votes Last reply
  • holli71505 2


    What would you interpret this test results. Final: Other infectious disease IgA Gammaglobulin 150 mg/dL (5/18/17 11:49 AM) IgG Gammaglobulin 742 mg/dL (5/18/17 11:49 AM) IgM Gammaglobulin 244 mg/dL (5/18/17 11:49 AM)

    0 replies 0 votes Posted
  • chris05340 2

    Mystery illness

    Hi folks Im 32 and for the past year or so I've been getting lots and lots of weird symptoms and despite numerous specialists and visits to my GP they haven't cured me. I've posted on a few different forums and a few people have said it could be an autoimmune disease so I'm on here...

    4 replies 0 votes Last reply
  • holli71505 2

    Immunoglubin Question

    I was wondering if a person immunoglubins are within normal range, but on the lower side, and the person just started to recover from a sinusitis and had a bad cold when the blood was drawn. Shouldn't some of the levels be on the higher side?

    1 reply 0 votes Last reply
  • Guest M

    Does ANYBODY know about Retroperitoneal Fibrosis

    Hello, my name is Christine and i live in the UK, I started getting back pains in March 2010 and attributed it to my job. In May 2010 i went to my GP and was signed off work as \"sick\", and prescried painkillers, which do not always work. My GP sent me to see a Rhumatologist who gave...

    21 replies 0 votes Last reply
  • Guest M

    Retroperitoneal Fibrosis

    I was diagnosed with retroperitoneal fibrosis in May, 1999 after 5 months of visiting a barage of specialist. At that time, I was a 44 year old female who had had no major health problems in her entire life. I just woke up in the middle of the night one night with the most horrible back pain I had...

    1 reply 0 votes Last reply
  • Becca4130 1

    Autoimmune gene HLA-B27 positive

    Female 38.  Anyone else have this that has suffered with crohns or mystery stomach symptoms? I have had ongoing stomach issues for over 7 years no positive IBD yet just telling me its IBS as of now but I get horrible pain where I can't even move or eat sometimes for weeks during flares. Had...

    6 replies 0 votes Last reply
  • brenwag68 3

    Is this Lupus?!?!

    Hi, I have been diagnosed as having Sjogrens as well as unspecified other autoimmune disease(s) I have all symptoms of Lupus, my doctor keeps checking my blood for Lupus (so far negative) but he does feel I may develop it in the near future. I wrote into another forum (and a doc emailed me back) I wanted...

    0 replies 0 votes Posted
  • melanie97081 1

    What is your biggest challenge?

    Hi, I have two autoimmune diseases and I have spent years working holistically to change the results of what was happening to my body.  I experienced lots of ups and downs through this journey of things that helped and things that didn't.  I am currently becoming a Wellness Coach and had...

    0 replies 0 votes Posted
  • greengirl58 1


    An autoimmune condition that affects the connective tissue, of your skin and muscles. A flareup may start with a rash, mine did, on the right side of my neck, which then spread to my face. Fortunately for me, I was lucky it was diagnosed within two weeks of the rash appearing or it could have gone badly...

    81 replies 3 votes Last reply
  • steve15859 2
  • roohan 1

    Retroperitoneal Fibrosis Need help

    my father is suffering from retroperitoneal fibrosis. His mass was 160 into 80 into 42mm. he underwent surgery and the mass was reduced to 100 into 60into 20mm. he is on steroids for treatment. unfortunately, when he re scanned after 3 months, the mass has increased to the same size as it was before...

    6 replies 0 votes Last reply
  • Hayhue 5

    Mystery autoimmune illness but which one??

    Hey all, I know no one is a doctor but I'm just looking to see if anyone has symptoms such as mine or if they can relate. I'd really like any direction that points to a diagnosis and/or possible relief that I can ask my doctor. I'll try to keep it summarized with my symptoms first then what...

    59 replies 1 vote Last reply
  • carlyone 2

    IgG4 disease

    Hi all, I was recently hospitalized with pancreatitis.  My IgG4 blood tests are above the normal standards. I have several other health problems which seem to be caused by my immune system. Question:  are there any specific doctors or clinics that just deal with autoimmune issues, and know...

    8 replies 1 vote Last reply
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