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Autoimmune Disorders

Also known as Antiphospholipid Syndrome, Behcet's Disease, Dermatomyositis, Goodpasture's Syndrome, Lambert-Eaton Myasthenic Syndrome, Retroperitoneal Fibrosis, Sclerodoma/Systemic Sclerosis

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  • What's Your Opinion?

    I desperately need some advice. I am sorry this is so long. I've been pursuing a diagnosis for a longtime but haven't been given anything definite yet. I have seen a rheumatologist for the first time. He gave me several prescriptions and lab orders for blood work and x-rays and I was to return...

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  • Always unwell doctors don’t know what’s wrong!

    Bit of a long one and I don’t even know if I’m in the right place ... I have been going back and forth to doctors and hospital for 3 years! I’ve had bowel problems and joint problems and I am 90% of the time unwell I get a lot of fevers and high temperatures as well as high blood pressure when I’m not...

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  • More disappointment...

    My upper and lower back and my hips are growing greatly more painful every day. So much so that I'm having trouble sleeping because it is so hard for me to get comfy. My legs feel so weak and stiff, I'm afraid when walking that my legs are gonna fall out from under me. And yet again today I found...

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  • I have been diagnosed with, igG4rd.

    I was originally diagnosed, a year ago. I had several second and third opinions. I believe the mass, has been there for six years. I only can imagine, how everyone, is feeling. This has totally changed my life, you have times and you are so tired and you begin, to begin to feel empty. It is very...

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  • Can anyone relate?

    Hi everyone, I have had symptoms on and off now since October and still haven't had a diagnosis. Has anyone else experienced this same set of symptoms? Does it sound autoimmune related to you? -Dizzyness. Not like the room is spinning, but more like my center of gravity is off and I'm being...

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  • Just diagnosed with IgG4 disease - talk to me!!

    Hi there! I have just been given the IgG4 diagnosis. I am keen to make contact with anyone on social media who reads this who has the same condition. My name is Nick, I am 55 years old, and live in Bournemouth with my wife and daughter. I have met the consultant who appears best placed to be in overall...

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  • Actemra and headaches

    i just injected my second dose of Actemra.  I will be taking once per week.   Can anyone tell me if they have experienced headaches. its more like a pressure type headache.   Any info about your experience taking this med would be much appreciated  ty tgif!

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  • Autoimmune hepatitis of liver

    I'm a young 27 year old wife/mother of two, who was just diagnosed two months ago with autoimmune hepatitis of the liver. I couldn't believe it. I went to emergency room feeling bad in my body and extremely tired for bout a week or two. I never thought I wasn't coming out. I stayed in hospital...

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  • Anti tnf reaction / envriomental reaction advice?

    Hey all i hope everyone is well.  so today and two weeks ago on a monday i was in a shopping centre and my ahnds swelt up and became puffy and sore. I only noticed it was a reoccurant symptom today. Thursday is my injection day so technically in my head the fact that it happened on different days...

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  • Dealing With Health Care Sexism

    Like millions of extraordinarily strong women before me, my symptoms are being brushed off as anxiety, PTSD, and a slew of other BS. Many of you may know at least some of the symptoms well: tingling, nerve pain, hair loss, weight loss, new food intolerances, tremors, fatigue, hot/cold hands and feet,...

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  • Dermatomyositis

    An autoimmune condition that affects the connective tissue, of your skin and muscles. A flareup may start with a rash, mine did, on the right side of my neck, which then spread to my face. Fortunately for me, I was lucky it was diagnosed within two weeks of the rash appearing or it could have gone badly...

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  • Venting My Frustration... and the Nightmare That Is DOCTORS!

    So, I've been sick, fighting an invisible illness for eleven years now and let me tell you my experience in the last two months and the amazing capability of the health system (which is zero capability if you were wondering)... Depression, Extreme Exhaustion, and Extreme Brain Fog are the three...

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  • Lots of strange symptoms, is it possible its auto immune?

    Hi, I have been posting in different area off and on trying to figure out what might be going on with me. About a year ago now I woke up with a pain in my side and what looked like a visible pull or something. Ever since then I have had weird symptoms that never go away.  My main symptoms are tingling...

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  • Shadows Spinning

    Has anyone ever experienced spinning shadows.  about a dozen times in the last year, I will wake up and the shadows (not the room) will be spinning.  Like I was watching a pin wheel for 10 minutes.  It is always at night and there is not nausea or dizziness.  Just a strange spinning. ...

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  • Hashimoto

    I've been diagnosed with hashimoto for about a month ago.  The doc put me on a paleto diet. The first two weeks many symptoms faded away. But now I've been experiencing dizziness, fatigue, brain fog, anxiousness. Is that normal symptoms for hashimoto? And should I be worried about it? What...

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  • Mystery spots on my son for 3rd year in a row

    My son is 7 years old and for the past three years he gets random welts on his bottom half of his body. They start out small and get larger, harder and hot. A fever always accompanies them. They usually last a week or two. Eventually they bruise out and disappear. They never come to a head. This only...

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  • IgG4 questions

    I was recently diagnosed with igG4 which is effecting my kidneys and trying to find anyone who can answer some questions so I can understand better as my doctors can't seem to give me a straight answer and when I google it I get all the medical stuff I really don't understand.  I need a...

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  • Is the Heliotrope rash permanent?

    My right eyelid developed a terrible itching that lasted about a week or two. They eyelid and under eye area turned a brown/purple color. This lasted a little longer than the itching. On Healthtap, the Dr said it sounded like dermatomyositis and that I should see my Dr soon. But, the itching and darkened...

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  • Does the heliotrope rash ever go away?

    I have extreme itching on my eyelid (just one) and it has darkened to a brownish/purplish color that looks like the photo's I've seen of heliotrope rash. I was going to see my Dr but the rash is gone. I'm not sure he would be able to do anything without the rash. I also have sporadic issues...

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  • High thyroid per oxidase antibody levels

    hi I've been backwards and forwards to doctors and feared to several specialists as I've been in so much pain with muscles,back, neck problems and had pleurisy twice in the last few years and many many virus bugs etc. Felt like utter rubbish had chest pains hospital thought I was having a heart...

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  • Connective tissue disorder

    Hi Hope someone out there can give me some advice. For the last 3 years I have been suffering from anal fistula. I have now been told by my gp that my esr , crp, uric acid levels are all high. He has said he is sure I have connective tissue disease due to all my joints from my toes to my neck are affected,...

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  • I believe something is seriously wrong....

    I'll try to keep this short. Last year March, I saw the campus NP for what I thought was anemia. My roommate had it apparently and suggested it to be a cause. I was very cold, feeling tired sometimes, and had lost 10-15 pounds in only a couple of months, going into the fall semester. Blood work came...

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  • Does this sound familiar to anyone?

    I have another post over on the shoulder forum, but I think whatever my problem is may be autoimmune because it comes and goes. Here are a list of symptoms: ~Started with chest/clavicle pain about 6 years ago. EMG for heart attack negative. ~ mild pain when writing on a whiteboard (im a teacher) that...

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  • Still have no idea what is going on..

    I got sick on Oct 5, 2016 what started out as uncontrolled vomiting, nausea, and upper abdominal pressure for two months, quickly turned into something worse. I got strange left sided body weakness, work out intolerance, hot flashes, extreme panic attacks, lost 25 pounds and haven't been able to...

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  • Looking for suitable doctors in Boston area

    Nine months of chronic fatigue and brain fog primarily with scattered neck headaches and general low flu like symptoms in the body, currently live in Maine but looking to find doctor recommendations in Boston or anywhere in NE.  Thanks.

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  • Elevated ANA & CRP, very low iron & b12, any ideas?

    I have been in and out of the doctors non stop for the past year with extreme fatigue, profuse sweating all the time including night sweats, left sided chest pain (which also put me into emergency department), skin rashes and constant itchy skin, anxiety and GI issues. Test results show elevated ANA...

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