Dermatomyositis
Posted , 54 users are following.
An autoimmune condition that affects the connective tissue, of your skin and muscles. A flareup may start with a rash, mine did, on the right side of my neck, which then spread to my face. Fortunately for me, I was lucky it was diagnosed within two weeks of the rash appearing or it could have gone badly wrong. I would like to hear how patients have recovered from this illness and how they have coped with any serious or non-serious side effects if any, and what they were, thank you
6 likes, 108 replies
craftyange
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I would like to know how you're getting on. What symptoms do you now have and what treatment are you receiving. I hope it is positive and you are getting better.
victoria13635 craftyange
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Did your rash go away? I had, what I later learned, was probably heliotrope rash on my eye. I asked about the itching and color change on healthtap and the Dr there suspected dermatomyositis and said see a Dr ASAP, but before I could make an appointment, the itching and discoloration are gone. Is this normal in dermatomyositis? Do I still make an appointment? My thighs are also sporadically itchy, extremely itchy. If I see a Dr, what type of Dr? Thank you.
mrsbarb41 victoria13635
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ellenfitz victoria13635
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victoria13635 mrsbarb41
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victoria13635 ellenfitz
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mrsbarb41 victoria13635
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victoria13635 mrsbarb41
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ellenfitz victoria13635
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Yes they can give you some hydrocortisone cream but make sure you are using an eye cream for sensitive skin like Cerave, sunblock, sunglasses, soap for sensitive skin and try using baby shampoo to wash your face and eyes not baby wash. Baby shampoo for your hair will help the itching.
victoria13635 ellenfitz
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Thank you. I am hoping it is something else, but the darkened skin on my eyelid concerns me. Especially since it's only one eye and my good eye at that. My thighs itch at times also, but not as often as my eyelid. I sure appreciate your ansers.
cb1650 victoria13635
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I've used coconut oil mixed with cdb oil. It's has helped to calm down the itching.
jan12585 ellenfitz
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cb1650 jan12585
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I've tried several things and sometimes they work then seem to not work as well. Currently I am rubbing the inside of ripe banana peels leaving on 30 mins or more, then rinse with lukewarm water. Also using maduka honey on wet skin or hair leave on 30 minutes or more rinsing. I then apply Flax seed oil then after avacado oil to skin while skin is still wet, for the hair while wet I apply argan oil to the scalp. I also make green tea add some lavender essential oils in a spray bottle kept in the refrigerator and use during the day soothing the skin. All soap caused irritation and dryness to my skin.
ellenfitz jan12585
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ellenfitz cb1650
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cb1650 ellenfitz
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It's very difficult to find anything to treat dermatomyositis except for drugs. There isn't much information I keep tract of what I try. The peels don't last long so I use them once they are peeled. I rub the inside skin until it starts to turn brown. It really helps with the itching and the redness is less. I hope this is helpful.
ellenfitz cb1650
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brenda45197 victoria13635
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I would certainly get to a doctor asap, that is how dermatomysotis started with me and I ignored the rash and it went away after putting cortisome cream. IShould have seen a dermatologist because or couple of moths latter I lost the use of my arms and some weknes in legs. I have now bee on pred for 7 months, startted 80 and I am now on 25 going to rduce it in August 1 to 20 so hopefully I am on my way to being normal again. I hope this helps.. The sooner you get dignosed the better for you. God Bless.