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Hi there! I have just been given the IgG4 diagnosis. I am keen to make contact with anyone on social media who reads this who has the same condition. My name is Nick, I am 55 years old, and live in Bournemouth with my wife and daughter. I have met the consultant who appears best placed to be in overall control of my treatment, Dr Neil Hopkinson. I am going to have a CAT PET scan to image any inflammation in my body in the next month. Last year I had a salivary gland removed, and the biopsy suggested a possible IgG4 disease. This January I had a biopsy in another saliva gland, which came back with the same diagnosis. There don't seem to be any support groups locally - although I hope I am wrong - which is a pity because they do exist for most other conditions.Hopefully I will receive one or two replies so that I can begin to understand how to cope with living with IgG4 disease - after all with a young family, wife and job,life must surely go on!!
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