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Does anyone have any personal experience of autoimmune neutropenia.?
My daughter (25) was diagnosed four years ago and the whole subject seems so vague. She sees a haematologist every six months who monitors her and asks how she feels - other than this no help or treatment is offered. She gets multiple mouth ulcers on a regular basis and often feels washed out and tired. She also suffers from IBS. Nobody seems sure how this will affect her in later life. Bone marrows punctures have been performed to rule out any 'nasties' but we don't seem to get any answers.
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