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At the end of my rope.
I started getting hives in November for 2016. I thought, "whatever it will go away eventually." After having it for about a month, I went to the doctor. They didn't really do much. I still had it, went back. They put me on prednisone for about a week. It only started to really impact after the end of the week. After i went off, they came right back. I went back and said im still miserable. I went on several different allergy meds. All three tiers. The only one i found worked at all, fexofedine, and i used the highest dose on that. Still was miserable. Went back. Put me on a 2 week prednisone dose. They referred me to a dermatologist. Dermatologist took skin graph, confirmed it was hives. I was so angry because i thought we were going to figure out the cause not that they were hives, i knew they were hives! In this time I had a swollen lip that lasted a couple days and puffy face. A couple weeks later puffy eyes. After that i had them refer me to the only allergist in my state (i live in USA) The allergist put me on several medications and the high dose of fexofedine. It worked! For a couple weeks anyways.. Than my hives came back and full blown. All over my body.. itchy, burning.. so miserable. i cant sleep i have full time job and i am taking 3 online college classes... I am so overwhelmed and upset at this point. I went back to allergist. He said lets see if we can get you on xolair shots. But my insurance would have to buy and deal because the allergist doesn't. And i cant find any specialty pharmacy that will ship to Vermont that my insurance will deal with... Except one and my allergist is horrible, they are not on top of it, and its been three days they and they have not sent my information to that specialty pharmacy for them to proceed to see if they can send it or not.. (i will cover that in a minute!) In the mean time they essentially tell me to sit tight. So i do.. Miserable.. all the time.. Using ice packs at night so i can numb my skin. Using cream i got from the dermatologist that helps with the itch a bit, triamcinolone acetonide cream .1%. Using sleep aids. Using the high dose of fexofedine, Benedryl, and the two medications (one is allergy related one is dietary related, both from allergist). Even on this.. I get hives... Sometimes i scratch till my skin bleeds. Than one day i wake up. My lips are so swollen i can hardly talk, and my face is so swollen, my body burns and itches.. I had to call into to work, my first time calling in for this.. I called my allergist and they prescribed me methylprednisolone. It worked!! And i've been on that since. When i dont take it my hives come back. Currently im on a low dose.
My allergist sent my pharmacy the wrong dose, quanitity and thougth they sent it in on a different date than they did... (like i said, they dont have it together at all, clearly) One nurse said to me i can be on the steroid one more week, than i go off because they dont want me on steroid long term. And we will "see how it goes..." My blood boils, i am so fed up with being miserable and the allergist acting like they dont care at all.... (Oh and another nurse said the quanitity for my pills was supposed to be 90 pills, 4mg, taking 4mg on even days and 8 on uneven days. WHILE the perscription bottle i got says and had... 10 pills... and it said "Take ten pills orally daily." MAN DID THEY GET THAT WRONG LOL And i verified with pharmisist that what they were sent was incorrect, it was. So now i am hoping the allerigst will fix it tomorrow so i can have my steroids back!
Anyways i need help.
I'm at the end of my rope... I just got through a major depression. And im glad because this is something that it making me go crazy and this is the exact thing that would put me over the edge.
I have had bloodwork.
I have a bad thyroid.
My bloodwork results were not horrible, but a concern enough to repeat the bloodwork months later (which is this month i will be taking my bloodwork again!)
I am on no other medications other than the ones said here.
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