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Autonomic Failure

Posted , 2 users are following.

Cowgirl918
Cowgirl918

Does anyone here suffer from general autonomic failure? I know a few people mentioned MSA or PAF. Just wondering about symptoms and treatments. Thanks

0 likes, 4 replies

4 Replies

  • kenaz
    kenaz Cowgirl918

    Posted

    The neurologist I first saw was looking at Dyautonomia due too traumatic brain injury. My symptoms are varied and many and getting more intenxe and frequent. I hope you find answers and the sharing really helps.
    • Cowgirl918
      Cowgirl918 kenaz

      Posted

      I have been told that I have Dysautonomic and also multi system autonomic degeneration. Hard to get a staright answer out of anyone about what that means. I haven't even seen a neurologist yet! Have appoinment tomorrow. It would be better if someone would just give me a final diagnosis. I know it can take years. Very frustrating.

    • kenaz
      kenaz Cowgirl918

      Posted

      Hi Cowgirl, I hope you get some answers. I live in Arizona and am a Vietnam veteran so I am at the mercy of the VA. You are so right, I have multiple autonomic problems and no on can give me a diagnosis. The only place that works with autonomics is Maqyo Clinic but VA doesn't cover them and being 100% disabled I can't afford to go. I am praying the neurologist can gove you some answers. Bad news is better than no newws, we keep getting worse and no one has a clue.

      God bless, Ken

    • Cowgirl918
      Cowgirl918 kenaz

      Posted

      I have tests tomorrow, Friday and Monday, Will share if I learn anything.

      God bless you too.

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