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Autonomic Dysfunction

Also known as Blackouts, Collapse, Dysautonomia, Fainting, Hypotension, Micturition Syncope, Orthostatic Hypotension, Postural Orthostatic Tachycardia Syndrome (POTS), Syncope, Vasovagal Syncope

Can you help? Discussions needing a reply

  • Sunnysky Sunnysky

    Do I have POTS?...

    Hello,  I was wonderig if you could help me, I have hypermobility and i'm aware I could develop POTS through having this. I have read about the symptoms of POTS and I feel it fits exactly what I have been experencing.  This is how a normal day goes for me..  when i wake up in the...

  • Is it POTS?

    So let me start off by saying that I have SEVERE anxiety especially about health related stuff. I definitely suffer from a fear of doctors and hypochondria.   A few weeks ago I had a headache for a week straight and nothing would touch it so I finally went to urgent care to try and get a prescription.....

All discussions in this group

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  • Strange vibration sensations - what's causing it??

    I've found several forums where there have been posts from people experiencing this disconcerting feeling of an internal quivering or vibration but none of them are current, so I wanted to see if anyone else out there is having the same experience and can share an insight into what might be causing...

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  • Please can anyone shed light on these symptoms!?

    Hi all For 2 yeas now I've been lightheaded and it's driving me crazy. Touch wood I have never fainted but I feel close to it sometimes so much I abandon my trolley in the supermarket and just go home. It's really getting me down. Please see below some symproms I've had,I wouldn't...

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  • Do I have POTS?...

    Hello,  I was wonderig if you could help me, I have hypermobility and i'm aware I could develop POTS through having this. I have read about the symptoms of POTS and I feel it fits exactly what I have been experencing.  This is how a normal day goes for me..  when i wake up in the...

    Posted
  • Is it POTS?

    So let me start off by saying that I have SEVERE anxiety especially about health related stuff. I definitely suffer from a fear of doctors and hypochondria.   A few weeks ago I had a headache for a week straight and nothing would touch it so I finally went to urgent care to try and get a prescription.....

    Posted
  • Baroreflex Failure / Baroreceptor Failure

    I am an 8 year head and neck cancer survivor, which needed extensive radiation. I now have labile hypotension, with either very high to very low blood pressure, unstable. All tests on heart etc, show that I these are normal, and it now appears that I have baroreflex failure - is a condition for long...

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  • Should I ask to be tested for POTS?

    I've been having unusal symptoms since January this year.  It started with dizzy spells where I felt like I was going to faint then fatigue and then I had episodes where my heart rate started increasing and I would get short of breath. I went to my GP who sent me for an ECG which showed nothing....

    Posted
  • Autonomic Dysfunction

    I would love to hear if anyone else has my condition. I was finally diagnosed today with autonomic dysfunction. my symptoms are sweating, fast heart rate & palpitations. All these symptoms are made worse with eating. I was sent home from the hospital with no guidance other than to avoid normal...

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  • Retraining your Autonomic Nervous System?

    Hi,  After being told I have Autonomic Dysfunction by my cardiologist, he said a few things like I would like to ask someone who has lived with it? He first said Autonomic Dyfunction is curable, by retraining your Autonomic Nervous System, things like HRV heart monitor (sycing your breathing and...

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  • Very high BP when standing with POTS. Please Help

    hello I'm 36 y male living in Germany. I'm suffering from horrible symptoms for 6 months, I have got a POTS syndrome with heart rate jumps from 75 to 120 with standing and many other sever POTS symptoms "dizziness, fatigue, PACs, tingling feet, shaky feeling...etc".But what makes...

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  • Help me with the futre

    Can anyone tell me what the futre holds for someone who has AD that effects there hart but they already take bisoprololo for it ? Please.

    Posted
  • Help Needed Please

    Hi All... Woke up this morning with my heart beating quite fast, walked to the toilet (About 10 steps) and my heart was absolutely pounding) I lay back down and my heart rate came down to the 90s - 100s but when I try to get back up it shoots back up again...Any suggestions please? I also notice after...

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  • Desperately looking for answer

    two years ago I had a seasonal viral infection (mostly stuffy nose, stuffy ears, fever and fatigue) which lasted almost two weeks. I didnt take any medication. Shortly after I noticed that something was "off" with my heart, could see my chest slightly moving with every beat and noticed that...

    Posted
  • POTS???!!!

    Im so scared! I think i have pots every time i get up my heart races im dizzy and i get light headed sometimes i dont want this to kill me im only 19 i dont know what to do i keep reading on it and its freaking me out please someone who knows about this POTS should i exercise is this going to pass...

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  • Low heart rate?

    So I have a low heart rate. ( resting) 50's and sometimes dips into the upper 40's when lying in bed getting ready to sleep and then low 40's when asleep. I've had ekgs, X-ray and blood work. Nothing. I'm 22 years old and have an apt with a cardiologist soon. Just got a referral today....

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  • Does this sound like a form of dysautonomia?

    Hello all, looking for some advice. I am a 22 year old male who was just diagnosed with erythromelalgia, which is a rare vascular/nueropathic disorder affecting my hands, face, feet. I also have luekopenia (mild), thrombocyotpenia (70k platelets), and elevated liver enzymes. I have been struggling with...

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  • New medication

    I was discharged from the hospital about 20 years ago to the care of my GP. Lately i have had massive problem with spasms at night which don't only wake me up but cripple me in the morning for several hours. My GP has put me on neurontin. Has anyone else been given this drug to take. If this...

    Posted
  • Diagnosing Dysautonomia

    Im hoping for some advice , i think i have dysautonomia but my dr keeps implying its stress, even though im not stressed. At my last consultation she said she thinks its my nervous system and said i have orthostatic hypotension aswell as hypertension but doesnt seem to be doing anything , i feel as though...

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  • POTS and digestive symptoms

    I was wondering if anyone here with POTS has experienced improvement with digestive symptoms with treatment for POTS. specifically the types of treatment that are geared towards helping the heart rate and blood pressure and not treatments specifically for digestive issues. The reason I ask is that I...

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  • Autonomic Nervous System problem or ?

    I'm at a loss or that's what I feel like. Three weeks ago out of the blue I had to call an ambulance. I was working 50 hrs week in a very stressful job, start graduate school for nursing, and extremely exhausted. I worked on a paper exhausted...drank a pot of coffee and when I was done I tried...

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  • What is wrong with me? Feint

    My vision became staticy, I saw a bunch of colors my ears began hearing static, I felt dizzy. Light headed. Everytime I ate something after a few hours the initial bite would hurt my stomach with a sharp pain, be it healthy or sweets.                ...

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  • PseudoPheochromocytoma

    Has anyone been diagnosed with PseudoPheochromocytoma? What are the symptoms? Treatment? Any specialist who can be recommended? Thanks!

    Posted
  • ??POTS

    Hi - I have a lengthy story of being "ill" since Jan 1.  It started as a possible pneumonia which is what they treated me for but I never got better with abx or steriods.  I then had a UTI with a different abx.  I had scans and xrays and the only thing that showed was inflammation....

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  • Some Kind of Autonomic Problem?

    This discussion will mark the third lengthy discussion I post on this site about the symptoms that have stubbornly continued to plague me for over a year now with no diagnosis or solution. Still, I think I've been getting closer to an explanation slowly but surely, hence switching to more appropriate...

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  • Could it be POTS?

    I've been having some issues with dizziness, fatigue, nausea and almost constant headaches (excpet at night) for the last few months.  I went to the doctor at the end of February after almost fainting during a physiotherapy session.  She said I had water in my ears which could explain the...

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  • I think I might have Pots...

    I've been trying for ages to find out what's wrong with me. I've had major struggles with dizziness for a year which is fine lying down but walking or standing is soooo hard. Episodes of heart racing insanely. Crazy fatigue. I did the 'home stand up test' and my heart rate was 42...

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  • Autonomic Failure

    Does anyone here suffer from general autonomic failure? I know a few people mentioned MSA or PAF. Just wondering about symptoms and treatments. Thanks

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  • POTS and exercise intolerance

    I have not been officially diagnosed with POTS however my doctor believes I have it and I will be seeing a cardiologist for testing. Just waiting on that.  I know exercise intolerance is common with POTS and I was wondering if anyone has almost a delayed reaction to exercise. I did some cardio...

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  • Neurocardiogenic syncope

    I was diagnosed about 2 years ago and it lasted for about six months. I could never figure out a trigger that was causing it. They had me on multiple medications which they had me stop taking due to them not working. I had a positive tilt table test where my heart rate and blood pressure would plummet...

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  • Neurogenic Orthostatic Hypotension

    Does anyone in this group have experience with this diagnosis? Waiting to see if it is PAF (pure autonomic failure) or MSA (multiple system atrophy). Have been dealing with this for years and now symptoms are escalating.

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  • Autonomic Neuropathy

    I have read so many discussions related to autonomic neuropathy. For those of you in the group, can you explain your understanding of the disease? How does it effect you? Do you take medication? I have a similar diagnosis and it is difficult to explain to others,

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