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Autonomic Dysfunction

Also known as Blackouts, Collapse, Dysautonomia, Fainting, Hypotension, Micturition Syncope, Orthostatic Hypotension, Postural Orthostatic Tachycardia Syndrome (POTS), Syncope, Vasovagal Syncope

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  • Autonomic Unit Queens Sq London

    Hi All I'm off to the Autonomic Unit in a few weeks for 3 days of testing, as a day patient .They are putting me in nearby hotel. Has anyone been for the same thing and can tell what to expect? Mandy

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  • Fell then blacked out for the first time-scared

     I've never passed out or really came close, until today. I was at my aunts house and we had just stuffed ourselves with a huge meal and I was already tired from eating so much, I was leaving their house to go to my friends and it was pitch black and I missed the step on their porch and fell...

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  • Strange vibration sensations - what's causing it??

    I've found several forums where there have been posts from people experiencing this disconcerting feeling of an internal quivering or vibration but none of them are current, so I wanted to see if anyone else out there is having the same experience and can share an insight into what might be causing...

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  • Recently Diagnosed But Have Doubts. Need Your Input.

    Okay, so I am very confused as to what is going on with me. I recently was diagnose with dysautonomia. Not sure what kin but that's what my cardiologist told me.  Here are my symptoms - tachycardia upon standing some days - dizziness/off balance feeling  - muscle tension ...

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  • Autonomic Dysfunction

    I would love to hear if anyone else has my condition. I was finally diagnosed today with autonomic dysfunction. my symptoms are sweating, fast heart rate & palpitations. All these symptoms are made worse with eating. I was sent home from the hospital with no guidance other than to avoid normal...

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  • POTS and mobility?

    Hi, I have been diagnosed with POTS this past month after over 12 months of symptoms. Over the past few weeks the symptoms have been getting progressively worse, the management is new and will take time to hopefully get things under control. I have recently returned to university after being advised...

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  • High heart rate and passing out.

    I'm 16 . I've had problems with fainting before but I wake up one morning about a week ago stand up and my heart rate is at 130 for no reason. I could hear it thumping in my ears it was pounding so hard.  It hasn't gone under 100 since. It's gotten up to 170. I haven't...

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  • Autonomic Dysfunction - Body pain and headaches?

    Hello everyone.  I was diagnosed with AN last year, confirmed through a QSART test plus a multitude of symptoms.  I have almost every symptom known to the disease, unfortunately.   For about the past 10 months or so I get episodes of total body pain.  In the late afternoon to early...

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  • I keep passing out and my symptoms are getting worse!

    Hi there, I'm a 19 year old lad that's starting to get a bit worried about my health. About a year ago I started to get a little bit dizzy when I stood up too fast (no biggy, it's quite normal for someone of 6ft). The dizziness slowly got worse and worse but was still nothing major up until...

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  • Does this sound like pots?

    Hi all Iv bin having an extremely rough week my heart rate has spiked very randomly I have got some thyroid issues which I'm waiting to be treated for, anyway I no my high heart rate could be due to the thyroid issue but when I'm lying down my heart rate is 90 then I stand and it goes straight...

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  • POTS help Just started treatment

    Hi I hope this is the right place for questions on POTS. I have been recently diagnosed with the condition and it's thought to be linked with my EDS (type 3). My tests also showed inappropriate sinus tachycardia. My tilt table was horrific with my BP dropping to 70/35 and my HR going well above...

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  • Please can anyone shed light on these symptoms!?

    Hi all For 2 yeas now I've been lightheaded and it's driving me crazy. Touch wood I have never fainted but I feel close to it sometimes so much I abandon my trolley in the supermarket and just go home. It's really getting me down. Please see below some symproms I've had,I wouldn't...

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  • POTS and finger nails

    I've been having POTS symptoms for roughly 3 years. I finally went to my Dr beginning of this year, and he immediately suspected POTS and started looking to diagnose it. Confirmed with a tilt table test in June. Met with a cardiologist today. Curious though. Does anyone else have horizontal indented...

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  • Postpartum rapid heart rate when standing or moving...

    I gave birth to my twins on the 4th of July what was meant to be the happiest time of my life turned so dark. The day after my cesarean I stood up to go and see my babies who were in NICU due to being prem. As I stood up my heart started racing and I felt extremely short of breath. A CTPA of my lungs...

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  • Very high BP when standing with POTS. Please Help

    hello I'm 36 y male living in Germany. I'm suffering from horrible symptoms for 6 months, I have got a POTS syndrome with heart rate jumps from 75 to 120 with standing and many other sever POTS symptoms "dizziness, fatigue, PACs, tingling feet, shaky feeling...etc".But what makes...

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  • Do I have POTS?...

    Hello,  I was wonderig if you could help me, I have hypermobility and i'm aware I could develop POTS through having this. I have read about the symptoms of POTS and I feel it fits exactly what I have been experencing.  This is how a normal day goes for me..  when i wake up in the...

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  • Is it POTS?

    So let me start off by saying that I have SEVERE anxiety especially about health related stuff. I definitely suffer from a fear of doctors and hypochondria.   A few weeks ago I had a headache for a week straight and nothing would touch it so I finally went to urgent care to try and get a prescription.....

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  • Baroreflex Failure / Baroreceptor Failure

    I am an 8 year head and neck cancer survivor, which needed extensive radiation. I now have labile hypotension, with either very high to very low blood pressure, unstable. All tests on heart etc, show that I these are normal, and it now appears that I have baroreflex failure - is a condition for long...

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  • Should I ask to be tested for POTS?

    I've been having unusal symptoms since January this year.  It started with dizzy spells where I felt like I was going to faint then fatigue and then I had episodes where my heart rate started increasing and I would get short of breath. I went to my GP who sent me for an ECG which showed nothing....

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  • Retraining your Autonomic Nervous System?

    Hi,  After being told I have Autonomic Dysfunction by my cardiologist, he said a few things like I would like to ask someone who has lived with it? He first said Autonomic Dyfunction is curable, by retraining your Autonomic Nervous System, things like HRV heart monitor (sycing your breathing and...

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  • Help me with the futre

    Can anyone tell me what the futre holds for someone who has AD that effects there hart but they already take bisoprololo for it ? Please.

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  • Help Needed Please

    Hi All... Woke up this morning with my heart beating quite fast, walked to the toilet (About 10 steps) and my heart was absolutely pounding) I lay back down and my heart rate came down to the 90s - 100s but when I try to get back up it shoots back up again...Any suggestions please? I also notice after...

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  • Desperately looking for answer

    two years ago I had a seasonal viral infection (mostly stuffy nose, stuffy ears, fever and fatigue) which lasted almost two weeks. I didnt take any medication. Shortly after I noticed that something was "off" with my heart, could see my chest slightly moving with every beat and noticed that...

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  • POTS???!!!

    Im so scared! I think i have pots every time i get up my heart races im dizzy and i get light headed sometimes i dont want this to kill me im only 19 i dont know what to do i keep reading on it and its freaking me out please someone who knows about this POTS should i exercise is this going to pass...

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  • Low heart rate?

    So I have a low heart rate. ( resting) 50's and sometimes dips into the upper 40's when lying in bed getting ready to sleep and then low 40's when asleep. I've had ekgs, X-ray and blood work. Nothing. I'm 22 years old and have an apt with a cardiologist soon. Just got a referral today....

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  • Does this sound like a form of dysautonomia?

    Hello all, looking for some advice. I am a 22 year old male who was just diagnosed with erythromelalgia, which is a rare vascular/nueropathic disorder affecting my hands, face, feet. I also have luekopenia (mild), thrombocyotpenia (70k platelets), and elevated liver enzymes. I have been struggling with...

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  • New medication

    I was discharged from the hospital about 20 years ago to the care of my GP. Lately i have had massive problem with spasms at night which don't only wake me up but cripple me in the morning for several hours. My GP has put me on neurontin. Has anyone else been given this drug to take. If this...

    Posted
  • Diagnosing Dysautonomia

    Im hoping for some advice , i think i have dysautonomia but my dr keeps implying its stress, even though im not stressed. At my last consultation she said she thinks its my nervous system and said i have orthostatic hypotension aswell as hypertension but doesnt seem to be doing anything , i feel as though...

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  • POTS and digestive symptoms

    I was wondering if anyone here with POTS has experienced improvement with digestive symptoms with treatment for POTS. specifically the types of treatment that are geared towards helping the heart rate and blood pressure and not treatments specifically for digestive issues. The reason I ask is that I...

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