Small fibre neuropathy

Hi,

I have autoimmune small fibre neuropathy.

My neurologist isnt interested in what I believe are signs and symptoms of autonomic neuropathy.

Long before I developed signs of peripheral neuropathy I had problems with excessive head sweating and feeling strange when it was hot.

Then about 10 yrs ago I became aware that my heart rate was sometimes high, and that if Isat down it would revert to normal, then go back up when I stood up..

Also sometimes during strong exertion. ( walking up a very steep hill) I'd have regular missed beats

Very recently I've had episodes of feeling like my legs were going to give way. A strange sensation starting in feet and spreading upwards, combined with sudden weakness and need to sit down immediately. Sensation goes as soon as I sit down.

Also ,at no particular time of the day or activity, a couple of episodes of very noticeable bounding, thumping in my chest, slow ( <50bpm) pulse . My normal be pulse is about 85. and BP is usually about 110/ 65.

During episodes of bradycardia I found I can increase my pulse by taking a deep breath, but sometimes it comes back quite quickly.

I don't much like either sensation .

Ive had several ECGs years ago,but of course they're all normal as not done when having any episodes.

Thinking of asking for a referral to Prof J Newton who's in our area and specialises in POTS.

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