Possible mild pots?

Posted , 3 users are following.

Hi there,

I'm coming here in hopes of some advice/clarification, i don't normally post on forums.

Quick bit about me, 28yr old, male, fairly physically active although over the past couple years my ability levels have dropped significantly, i was a pretty heavy smoker, and drank a fair bit. All that has stopped.

Almost two years ago i had a sudden onset of some pretty sever symptoms, SOB, fatigue, wake up with my heart beating out of my brain, strong anxiety like nothing I've ever felt before. I went to the gp ran some tests and came back with an overactive thyroid, which matched my symptoms so i thought problem solved! However over the past year and half ive never felt great.

About 3 months ago I quit work to focus on me, changed my routine and my stress management techniques, quit smoking, drinking, gluten, sugar.. following a mostly Mediterranean diet. now my symptoms have improved however...

I am still SOB, and have random bouts of fatigue, paying close attention to my hr i notice i can be on the couch and it will be in the 60s-70s, then when i stand up and move arpund and do things it will jump to 90-100 and not come down until i stop moving. I don't feel dizzy or lightheaded, but it is erratic.

I did a poor mans tilt table test with my fitbit and a bp monitor i had to monitor the overactive thyroid, I lay down for 30 mins, clocked my hr at 68, and bp at 122-75. on standing my hr elevated to 90, bp went up to 144-88, both the highest reading i got, it started to level out to the mid 80s but over the ten minutes would randomly shoot back up to 90 even though i was dead still. I felt a bit strange standing there for ten minutes, my hands and feet started to tingle and i sweat. I know a diagnosis is elevation of thirty bpm or more but it seems a weird reaction. I'm sort of wondering if its possible to have very mild pots or if maybe its just how i am based off my overactive thyroid diagnosis.

Of course i've discussed this all with a gp and gone to see a cardiologist who say its normal but im sure alot of people here have found that their word is not always gospel(not disparaging the medical profession, its a very difficult job) and i know that once upon a time these things did not happen to me.

Thank you for taking the time to read this and for any input.

0 likes, 2 replies

2 Replies

  • Posted

    It looks like you have orthostatic tachycardia. Doctors will often say it's normal and okay, because it's not life threatening. But it's very uncomfortable and unnerving. The thing about Western medicine is that they will give you drugs such as beta-blockers if you want them. But there won't be much done in the way of healing or lifestyle management. It sounds like you're already doing all you can.

    You may want to find a chiropractor who works with nervous system imbalance.

  • Posted

    I know this is an old post, but I thought I'd reply anyway. People with autonomic problems often go many years before getting a diagnosis, so maybe this will still be helpful. But I hope you are feeling better and got things sorted out already!

    Typically GPs and cardiologists don't know much about autonomic problems.

    I know this may not be easy, but you need to find a good endocrinologist to look into this, and then quite possibly an autonomic specialist.

    There are other conditions with similar symptoms to POTS, but without the classic POTS tachycardia pattern on standing. These are called orthostatic syndromes or chronic orthostatic intolerance.

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