Hyperhydrosis/Autonomic Dysfunction?

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I am in my 20s. I have been having extremely strange but debilitating symptoms. For my entire life I have had hyperhydrosis and severe facial blushing. However, about a year ago I started having hot flashes all the time with generalized sweating all. More recently over the past 6 months or so, I began having waxing and waning back pain and like electrical/tingling/vibrating sensations down my upper back/lower neck all the way into both legs. All of my muscles twitch and spasm, which is made worse with anxiety. When I get anxious, my face will tremor and I will get the vibrating/tingling sensation very bad down my back and into my legs. My legs have recently become very shaky when standing or leaning certain ways. I have also been having spasms/"twitching" of my digestive tract, including my esophagus which always hurts and spasms. Could this all just be anxiety? I've had extensive workups in the past and it has yielded nothing. However, more recently since all these worse symptoms started I am having the hardest time getting into a neurologist. Has anyone experienced anything like this in the past?

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2 Replies

  • Posted

    Have you had specialised autonomic testing for the hyperhidrosis? If you can see a good specialist for that, they may be able to help you more generally, or make referrals for you. It could be a way to get your foot in the door.

  • Edited

    Have you had a basic test for orthostatic intolerance? Ask your GP to do a NASA lean test or active stand test. The Bateman Horne Institute has good instructions available on its website. (This may or may not reveal anything – it doesn't rule dysautonomia in or out but can help identify whether your blood pressure or heart rate are doing anything abnormal.)

    Apart from that, ask to see an autonomic specialist and a hyperhidrosis specialist. The best place to get suggestions is often a local or regional Facebook group for dysautonomia or hyperhidrosis. You can also look to any patient support organisations in your country.

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