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RSD/CRPS to Vagus Nerve Reset to Autonomic Dysfunction.
Bc of the manner in which it sourced & evolved, getting a diagnosis was tough & an uncommon/extreme one at that.
• Horizontal living
• Essential tremors (doesn't have to be but mine happens to be motor-like sensation, vibrations being full body, even like an energy fields surrounds my body)
• heart on overdrive at rest
• shortness of breath
• nerve pains
• the list never ends with how your nervous system impacts all functions & systems of your body.
So the electric system is ramped up, with no way to effectively slow it, meaning my heart is pushing limit without enough of the blood to fulfill necessary pressure, & not sending the blood it doesn't have enough of to my brain properly.
First thombaric autonomic neuropathy, but now, MSA multi-symptom autonomic neuropathy dysfunction.
BEST ADVICE is Not to Settle Until the Shoe Fits.
I thought I had POTS, & ALL SORTS of things but not all was fitting & with how it progresses overtime, it is difficult to get proper diagnosis. It is an unusually uncommon condition that even gets diagnosed.
Just in case someone else may be lost & desperately searching for help.. finding these two myself to take to nuero is how I learned I have 3-5yrs left. Which is with suffering the progression, heart attacks, strokes, as a vegetable, etc until finally passing.
I've decided to refuse care. Prob wont make that 3 year minimum.
MSA CLINICAL STUDY SHOWS
Clinical studies showed 6 of 6 patients refused having a trache inserted, led to their passing. I can't even imagine refusing what would allow taking a breath.. except for conditions to be worse than what comes after that breath.. which is to still be living, as is.
Hope Nobody else is headed this way but best to find it quicker if you plan on prolonging survival.
PROTEST/MY VENT IS FOR GOVT FUNDING STUDY SCIENTIFICALLY SPECIFIC TO THE UNDERSTANDING OF THE NERVOUS SYSTEMATICS.
WE ARE ALL WORTH IT! AND IT IS NOT HAPPENING AS YOU WOULD IMAGINE BC THE LACK OF FUNDING & COLLECTIVE STUDIES/FINDINGS/ETC. SPECIALISTS WANT TO BUT THEY CAN ONLY WORK WITH BIG PHARM MEDS AVAILABLE, APPROVED PROCEDURES.. WHERE'S THE PROGRESSION. IF DISCOVERIES ARE MADE, SUCH AS RSD/CRPS CURED VIA VAGUS NERVE RESETS, WORD IS NOT SPREAD ENOUGH TO MAKE WIDESPREAD DIFFERENCES. IT'S ALL NOT OKAY.
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