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average age when first diagnosed?

Posted , 9 users are following.

stellarose369
stellarose369

I realize that asking for age is a usual no-no, but we are all here because share the same disease. I was diagnosed with Lichen planus 2 years ago at age 58. It was a mild case mostly contained to my limbs. Without any specific treatment, it mostly resolved (with the exception of ugly brown skin staining) in about a year. Almost exactly 1 year to the day, it came back... with a vengeance. From the neck down, I am covered. My mouth is full of painful lesions. Finally was able to see a dermatologist and have been treated with clobetasol and now Tacrolimus w/o much improvement. Moving onto trying UV light therapy. Please share your history and would love to hear positive stories of clearing! Thank you, Terri

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  • di220352
    di220352 stellarose369

    Posted

    Hi I thought I would send you the link as it made me aware of the omeprazole and I am so glad that you are trialling stopping it, like you I was aware that the LP calmed right down after stopping, the first thing I noticed was that I didn’t itch so much and at this present time I am just about clear of all spots just need to get rid of the purple marks on my legs.

    Good Luck Stellarose, will look forward to reading more on your progression

  • linda32054
    linda32054 stellarose369

    Posted

    I was diagnosed with OLP about 18 months ago by a lip biopsy.   I had already been seen by a dentist, ENT and primary care doc before I finally figured out I needed to see a dermatologist. He is the one who finally diagnosed me. Originally I used Betamethasone Dipropionate, then Tacrolimus Ointment. Neither of those did anything to resolve the lesions in my mouth. The dentist thought I had a yeast infection so he prescribed Fluconazole and Nystatin. Needless to say it was not a yeast infection. The dermatologist tried me on prednisolone (swish & swallow) it did nothing. He then prescribed Methotrexate (which had terrible side effects - hair loss and weight gain), then he prescribed Mycophenolate which also had terrible side effects - finally he prescribed Plaquenil and it worked great, but again terrible side effects. Can cause macular degeneration. At this point I had tried everything so I decided to quit all drugs and just see what happens. Well, its been about 2 months and my mouth lesions are slowly going away. I still cannot eat spicy food or acidic food or red wine, but I get by. I'm just hoping I don't have another flair up like I had a year ago when I couldn't eat anything. I'm not convinced that OLP is caused by stress as I was under absolutely no stress when this started. 

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