Awaiting diagnosis and treatment

Once you get your diagnoses it will put you in a position where you can select which treatment route to take. The key is to research the different treatments. The meds for TN can have a lot of side affects. My pain responds to heat some people use ice on the affected area for pain. There is a lidocaine cream at your local pharmacy that helps when applied to the affected area. Hope you get relief soon.

Sorry to hear that you are going through this at such an early age. Please click on my profile name to read my posts. I went through the surgery in 2016. Have posted my experiences. Will be glad to answer any questions you have.

I’m so sorry to hear that you are suffering with this. I was 26 when I was diagnosed so I understand how awful it is to have this condition at such a young age. It was 14 years ago and unfortunately surgery and destructive procedures were not great at the time but things have come on a lot since then. I don’t know where you live but the first thing I would say is make sure that you have a good surgeon if you are going for surgery. there are so many wonderful success stories but you need somebody who knows what they are doing, don't be afraid to research and ask. all of the medications have awful side-effects and awful with drawl when you come off them. I used pregabalin for many years and found although the side-effects and withdrawal are awful it did relieve the pain well although I often would have to be on large doses that were recommended by my neurologist but were much higher than Dr recommendations. I tried switching to gabapentin and was on it for two years maximum dose and still getting awful pain but the side-effects weren’t quite as bad but in hindsight it didn’t work so wasn’t worth it. I had good success with the glycerol injection but unfortunately when coming off the medication the pain started to come back but definitely not nearly as bad as before. I switched back to pregabalin as I only need a very low dose at the moment and I’m on 100 µg twice a day which isn’t so bad, disapointing of course but more bearable than before. research the medications and try different things until you find something that works for you while you are waiting for something more. If you are worried about the surgery the destructive procedures are also a good option and less invasive. Other alternative things to try our CBD balm, Accupuncture if they know what they’re doing and homoeopathy again if they know what they’re doing, I have had some success with all of these. also something a lot of people don’t know is that high levels of potassium in your diet will aggravate the neuralgia, cut out bananas, raisans and other high potassium foods. wishing you all the best xx

Thats interesting what you say about food. I eat bananas every day and raisins probably every other day. Didn't give it a thought they could be aggrevating it. I don't mind having the surgery now, if that's what he suggests, because i know it will be a good option. I'm on so many other pills for other issues i don't really want to be on pills for this long-term, especially so young i end up rattling!

I do have pernicious anaemia and apparantly a b12 deficiency can increase the risk of neuralgia, which i have mentioned because no-one else seemed to have picked up on it, so i will mention it tomorrow but not sure they're going to do anything becaues i already have injections. Hopefully i'll get more answers tomorrow x