1. Community
  2. Gut, bowel and stomach
  3. Ulcerative Colitis

Awaiting diagnosis - Indeterminate Colitis Mentioned

Posted , 4 users are following.

michaela2389
michaela2389

Hello, I am new here I have been going through some issues with my bowel movements recently and I have so many questions and concerns which my health care team are investigating, but its such a slow process I would like to hear from others.. Its affecting my life more and more as time goes on and I feel I have no one to talk to that really understands.

?October 2017 I started to notice mucous and a little bright red blood on the toilet paper, and then noticed it was on my stools too. I gave a stool sample as requested by Dr and all came back clear. This has gotten progressively worse, I experience so much mucous now that I daren't pass wind as I have had an accident from doing so, the mucous is so much it could fill a cup or maybe more through out the day, the biggest amount comes in the morning. The blood has increased and there is now a lot of it, it seems to mix with the mucous but most of it comes once the mucous has passed. I feel I need to rush to the toilet often, thinking I may need a BM but its mucous - this occurs about 6-10 time a day. I have stomach bloating and cramps which have got markedly worse this week since my sigmoidoscopy. Ive had full blood count done twice, all came back normal. 2 stool samples both came back normal. Sigmoidoscopy this week which showed 'inflamed granular mucosa with contact bleeding and mucus to just past rectosigmoid junction. Rectum: inderterminate colitis'. I seem to constantly have had mouth ulcers over the last few months which I thought nothing of but have since read can be a symptom of IBD. I had biopsies taken during the sigmoidoscopy but I have been told I will not hear results for about 4 weeks... I called my local GP as I am in a lot of pain at the moment, and he commented 'oh its unusual the blood tests came back normal if you have inflammation' - I feel I am going to get fobbed off with IBS and have no real treatment plan or way forward other than taking buscopan and paracetamol and being told I have to put up with mucous constantly coming from my backside.... this is affecting my life in general, making me feel down, affecting my sex life as I am constantly worrying I will leak mucous during sex, giving me an unhealthy relationship towards food & making me feel very tired. I have a family history of Crohns disease, but I feel my symptoms point more towards Ulcerative Colitis or Proctitis - of course I will go by whatever the Doctors come back with as I have no choice, but if anyone out there has something diagnosed which is similar to my symptoms I would be grateful to hear, and know what helps and how life moves forward! 

0 likes, 3 replies

3 Replies

  • michelle34409
    michelle34409 michaela2389

    Posted

    Hi I too had similar symptoms to you without pain .my sigmoidoscopy showed inflammation at the rectum and I was diagnosed with proctitis then my biopsies came back clear and all bloods were fine . my consultant told me it was just one of them things and told me to basically live with it . I saw a colorectal specialist who pushed for another sigmoidoscopy which showed the same thing but this time the biopsies showed inflammation . I was fine using enemas for 5 weeks with no symptoms then had my first bad flare which sounds like what your having now . the pain blood and mucus was awful . after a month of suffering I reluctantly started taking oral pred and within 2 days all symptoms went away . ive now been 5 months symptom free . Hope you get answers soon .
  • milena87
    milena87 michaela2389

    Posted

    Hi in my own experience try to read about VSL3 probiotics they are quiet expensive but try to find them on ebay.All bowels problems start when our bowels flora don't have enough good bacterias.I am suffer from CU from many years and this helped me.However now I need something strongerbecouse struggle after pregnancy and can't manage in any ways sad

  • Sallryan
    Sallryan michaela2389

    Posted

    Hi ..i was diagnosed with proctitis in 2005 and 2 years ago it had spread to left sided colitis. Your symptoms are more or less like mine were prior to proctitis diagnosis. I have learned with mine if there is no diarrhoea then i have inflamed rectum (proctitis ) if i have diarrhoea then its from higher up as large colon cannot absorb water when inflamed. One thing i have learned is although UC has similar symptoms in all sufferers its still a unique illness to each individual. Once your correctly diagnosed keep in touch with your care team. In Nottingham we have an IBD helpline with fantastic nurses who can help there and then and quickly get you in clinic if needed. Hope your sorted soon.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.