Awaiting MRI after numerous tests-ms or migranes
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so i have a spinal and neck mri tomorrow. this is after 7 months of sensations and tests being done. it started in april wheni partially lost half of my vision in my right eye. it lasted for about 40 mins then eased back to my normal blurry vision, while this happened i couldn't say words properly.
went to an eye specilist as also had failed perifial field test. he referred me for a mri which was clear. about a week after the mri i started having symptoms of very weak tired feeling arms and legs, clumsy using fingers to hold things etc, tingly right hand and freezing cold patch on right hand and arm, tingly went to left hand and feet. the tinglying in right was continuous for 3 weeks. the rest on and off also buzzing down nose. after about 3 weeks it all went away then it started to come back again. tingling in right hand and face was continuous for weeks. had an instant where i was speaking to a customer and felt my tounge was going numb or my speech was slurring then my right arm went extremely floppy and rubber like. chill blains on toes and instance of feeling like a tight string tied around my toes. feet going extremely numb in cooler weather and pins and needles, cramps. neuro doesnt think this is ms as the brain mri was clear. he thinks its a migrane but cant explain the auras (tinglying, cramps etc) lasting for so long. i also do not get headaches during this. has anyone experienced this or get this from migranes?
0 likes, 3 replies
jeralyn31046 k76787
Posted
Hang in there. I was misdoagnosed with MS for several years. back to looking for cause. i have never had migraines or aura so cannot speak to that.
the sensory perceptions I have had similar to what you describe. still do. Be sure they check for spinal stensosis or other vertebra issues. the MRI on mine was clear for years and then 7 lesions detected. i still have same but the recent changes on defination Ms states they have to be in specific locations. mine are in different place. ....for 50 yeas and probably a birth defect. Good news is brain is stable and no regression. But several symptoms have pessisted. mine are likely related to spinal congenital defects recently noted.
Wish you the best. keep a log or diary of daily symptoms and changes. That might help.
Jeri
i
k76787 jeralyn31046
Posted
thanks Jeri. that must have been frustrating being misdiagnosed. its not like you want to have ms but sometimes a name or diagnosis is healing. had mri this morning, they said they were requested to use contrast from the neuro but then they didnt use it anyway. im wondering if that means there was nothing there to look further into? now awaiting results from this and a chest xray!
jeralyn31046 k76787
Posted
i continue. with my resting as it is likely congenital and might affect family members. Be persist and keep a diary.
Dye does help getting more detail. they tend to do thos once a year if concerns..here in USA. But if it was normal that rules our brain tumors so that is good. wonder what chest xray eas for. Diagnosis is not easy. keep yourself informed. wishing you the best.
jeri