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Lately I have been getting some awful symptoms, mainly at night just as I'm trying to sleep. Firstly my thigh muscles feel tight, then I get weird shiverring feeling from my pelvis down my legs and back up to my pelvis. This keeps triggering for a few hours sometimes with bad upper gastric pain. As soon as the tingling shiverring starts, my blood pressure jumps to around 185/115 and I get very cold. Temperature goes down to 35 degrees and every muscle in my body starts shiverring as if I had been sitting in a freezer. I feel nauseous and have the need to urinate every 10 minutes. These symptoms last for 2-3 hours and die off a bit so I can sleep and I wake up feeling unwell and drained.
My doctor says this is neuropathy from taking propylthiouracil for my hyperthyroidism (4 years on this medication) but my thyroid levels are stable.
One positive lyme test and a suspicious one from France as my lyme levels were 4.7 (only counted as positive if 5.0 or over)
Doctors won't listen to me or accept these results and I'm getting sicker and sicker. Do I just self medicate as I'm afraid this is going to kill me before someone listens enough to treat me.
So far diagnosis given: fibromyalgia, borderline vasculitis, hyperthyroidism, adrenal maladaption, neuropathy, multiple chemical sensitivity, lyme disease.
Only being treated for the hyperthyroidism and doctors say I must be weened off the drugs as they are causing this, although I was very sick for 3 years before being given these drugs.
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