Awful thyroid symptoms

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I have been on 25mg of levothyroxine for over a year, but I am still getting horrendous symptoms example- plantar fascitis, severe tiredness I could sleep twenty hours a day and still feel tired, loss of sex drive, itchy scalp, itchy vulva, sinus problems very dry scaly skin, depression feeling very low in mood no energy at all weight gain, clenching my teeth without even realising am clenching will I ever feel well again or is this as good as it gets. Any advise would be a blessing I am seeing a thyroid specialist the end of month.

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  • Posted

    Get your blood work done. 25 is not a very high dose.  The key blood tests are known as TSH, T3, and T4. I am surprised you were allowed to go as long as a year without follow up.  Ask for a three month follow up next time

    Good luck and let us know how it goes!

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    • Posted

      Hi Dave I have had bloods done twice in eighteen months I thought it has been a year it has been over a year I am seeing the specialist on the 26th so hoping to get this sorted the biggest upset is losing my hair it was really thick and now it's so thin had to go above shoulder length and get it all cut off thankyou for your advice.

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  • Posted

    Did you have bloods done every six weeks after starting the meds? It sounds like you are undermedicated. The correct bloods for thyroid are TSH, T4 T3 fT3 fT4 plus antibodies. But you will find it hard to get all these done by a medical professional. I have only just got an endocrinologist to do them after suffering 15 months.

    Do you take your levo well away from food and caffeine? Do you take any supplements?

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    • Posted

      Since being on the medication I have gone backwards and forward to my gp he did bloods twice since I started on the medication and told me they were at a normal level and did not need an increase my hair war very thick it is now very thin i had to take a bag of hair to my gp and sobbed before he referred me to a thyroid specialist I have had ten hours sleep today and a nap after tea it's so depressing it is actually longer than a year since this first started all my symptoms are just getting worse is there any truth in taking iodine supplements to help with this condition if so any recommendations thanks Jeanette.

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    • Posted

      And yes I take my medication first thing in the morning with water and my gp refused to check my t3 he said that the lab won't check that have my appointment the 26th.

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    • Posted

      Jeanette hi,

      You definitely need to have your thyroid levels checked every 2-3 months and you need to see a specialist (endo) that can monitor your blood tests. Also do you drink a lot of tea. Just remember everyone's body is different I was on levo then got switched to synthroid and I felt terrible everyday. I had tremors.. Chest pains.. Fogginess.. Anxiety etc. now I don't take any thyroid meds and I feel fine. Because my levels were are normal and my endo said she don't want me to take thyroid meds if not necessary so please get your levels checked first.

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    • Posted

      Hi I am seeing a endocoligist on the 26th I do get all the symptoms you get too I am also on propanolol for the palpitations my most upsetting part of this is my hair falling out its gone so thin and the tiredness is awful I do drink tea but never just after taking my meds I have seen medication with iodine being recommended is this true and can anyone recommend this too me and in nearly eighteen months my gp has only done my bloods twice and refused to check my t3 he said that the lab won't check that they just check the t4 thankyou to everyone that has answered my question.

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    • Posted

      Hi i have been taking 125mg of levo for 5 years and have had nothing but problems. The same problem with my feet joint and muscle pain extreme tiredness and depression all caused by my underactive thyroid. My endo believes none is related to the medication which i disagree. I have another app next week in which i will request all blood work to be done not just TSH and T4 levels. Do they actually know what they are talking about i honestly am beinginning to think otherwise!
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    • Posted

      Jeanette,

      They say caffeine can make your palpitations worse so I use to love to drink sweet ice tea but I stopped also I experienced a lot of hair shedding. I have also looked into seeing a GYN because premenopausal has the same exact symptoms as hypo/hyperthyroidism. But yes my endo took me off synthroid it was making me sicker where I couldn't even go to work and my levels were fine my TSH was 5.83 which she say that wasn't a big concern since that's in the normal range up to 5.0 but some people use normal range up to 4.0.

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    • Posted

      Hi,

      If your levels are high T3 T4 TSH then may need to try brand synthroid it works for some people and why do you have such a high dosage. I started of at 25 on levo and then went to 50 on synthroid. The only reason I can think you should be taking such a high dosage is if your level are not in normal range. Have your level checked every 2-3 months with your endo.

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