Awful tooth aches!!

Alley Hi

I have a few signs that I may have GCA , but my GP, who is really well up to date, has sent me to a neurologist because of the head pains that I am feeling..

My GP said , that because I'm already taking Prednisone,  then MRI and other tests are not going to help in the diagnosis and to start taking large doses of prednisone without confirmation is a mistake in my case. ( I'm having a bad time on prednisone)

Thanks for your quick response. I appreciate this site sooo much! So many questions and not lots of answers...however, many more than I ever get from doc!! Please keep them coming!

Hi I too gad a real dental problem keep on top of it I let it go my head swelled up and had a serious infection in my lower bottom two teeth ended up in surgery to have them removed.  At first we thought it was the GCA and we put my dose up not a pleasant thing to go through.

Sorry, taking 200 mcg per day to eliminate my sensitive teeth symptoms.

Do you mean 200mg?? Isn't that an AWFUL lot??

No - micrograms, not grams!  There are 1000 micrograms in a gram!

Oh Wfewww! Thanks 4 clearing that up! I thought, omgggg, that's an incredibly large dose. LOLOL...need 2 get more educated!

Ha ha, no wonder you were shocked and appalled!  Just trust the dosage on the bottle.  Mine says 100 mcg per day, Australians are suggested to take 180 per day.  As 100 didn't seem enough for me, and I don't live in Australia to get the 189 mcg capsules I'm happy and feel safe taking 200.  

Boy Eileen...you're on a roll tonight. It's not a matter of getting my "big girl pants" on! I have a TRUE fear of dentists due to 2 specific procedures I had done in years past. Couple that with horrible memories of having my tonsils removed as a child and a mask if ether put over my nose/mouth, and you've got the makings of a full blown phobia of someone working on my mouth! I've even had therapy for this to no avail! I'm not sure if it's the side effect of pmr/pred right now, but I'm very sad that I'm feeling the need 2 explain myself.

No I do get the phobia bit - but you also DO need to have someone at least look at your gums. Sorry if you don't like my direct talking but that's the way I am.

Come clean with the dentist and ask for some kind of sedation, relaxant, anti-anxiety pill, whatever, ahead of time to make you more uncaring about what's happening.  I'm sure you won't be the only adult they've met whose had this issue.  I was prescribed something, I now forget what but I think it was pretty heavy duty, maybe related to diazepam, to help with my not true phobia about flying - I was just so tired of having to concentrate to get the plane safely up off the ground, and then deal with terror during turbulence, never mind the stress of guiding the plane down to the ground (I'm a passenger, not the pilot!) and the little pills stopped that anxiety.  Now I find that a simple natural remedy works, called Rescue Me, but possibly I needed the serious medicine to break the pattern first.  

Btw I was told about the medicine by a friend of mine who has a true phobia about cats.  She was once out for an evening walk with her daughter, then about nine, when a cat appeared in front of them.  This responsible, caring, mother shoved her daughter in front of herself for protection!  Years later she found when on the drug she was totally unfazed by a cat casually being near her.  It's never something you'd take regularly but works for occasional use and in my case seems to have broken an unsettling progression from mild nervousness to near terror.  i have flown many times the last few years, only using my trusty Rescue Me.  (I only used the medication a few times, very small quantity prescription, renewed perhaps once.) 

LOLOL...thank you SOOO much for your hysterical response to my woes!! I'm still laughing as I type this into my phone! Man, I really needed a good chuckle right now! I don't know if you've been reading reading my posts, but I recently got kinda "slammed" for my "phobia and my desire to want off of prednisone to quickly. I'm a very sensitive person anyway but seem to be even more so nowadays! Anyway, I really appreciated the "breather"! Wow...I too have a super fear of flying, tend 2 white knuckle it all through the flight. Now, after more than a decade, I'll be taking a flight next week (along with my service dog and portable oxygen). Ughhh...ANXIOUS!! Well again, thanks so much 4 your post. It's made my day!

Hi folks...if anyone out there has followed my posts, you're familiar with the fact I'm flying on a 5 hr flight with a layover next week. It's been over a decade since I've flown and I literally white knuckled it the whole way (especially take off and landing). And THAT was when I didn't have any medical issues! I'm sooo looking forward to seeing my daughter and meeting my grandson for the very 1st time! However, I'm kinda in a "tailspin" right now...full of panic and anxiety. Also, I've got an upcoming dental appointment for which I've got a HUGE phobia! After discussing all this w/daughters and Bestie, I've made an appointment w/primary tomorrow to try to obtain valium. Only problem is, he's extremely conservative when it comes 2 prescribing medication. Anyone have any words of wisdom I can impart 2 convince him this would be more than appropriate to do at this time? Any advice would be greatly appreciated!

Don't start out by asking for a specific medication.  There may be something else more appropriate for your anxiety attacks.  

Like what?? I thought valium and xanax were the best bets for this, especially short term such as flying. I just want to be prepared!

Hi Lynda

My daughter isn't too fond of flying  either , and she uses 'rescue' which helps her a lot. 

If you live in the U.K. It's sold in boots the chemist. 

https://www.medicalnewstoday.com/releases/75640.php

I'm just suggesting the doctor will in all probability know best.  I wish I could remember the name of the drug I took.  It was very effective.  But I think it is usually used for major psychiatric conditions and when I learned how heavy duty it was I never took it again.  I guess valium is a brand name for diazepam, so it couldn't have been that, I'd have known.

My research of a few minutes just now turned up an article I'll private message.

 

Thank you! And yes, diazepam is the generic for valium but it's not a heavy duty psychotic...just an anti-anxiety med. I'll be waiting for your message.

After the fact I read up about the medication and was shocked at myself for taking it.  It may have helped the anxiety on the plane, but I don't think it did anything for my equilibrium while on holiday.  But I didn't know it might have more long lasting and far reaching effects.  Next time I see the friend who recommended it to me I must as her if she remembers what it was.

How very interesting! My friend in the UK used to swear by it.

If it's the rescue remedy I use it is astonishingly helpful.  

I recommended the rescue remedy. ( herbal)

But my post is  still waiting to be censored...

my previous post has now been printed. 

Thanks admin. 👍

It was the link which needed to be vetted by the moderator.  

Interesting. Thank you.