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Azathioprine with ulcerative colitis

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jason65694
jason65694

Hi guys wonder if anyone can help ive been on azathioprine for Approx 6 weeks and the last 2 weeks have been hell !! My knees feel like they've been shot im not sleeping in the nights always have a headache cold sores chesty cough sinus trouble ! Think thats about it lol just wondered if this is ever going to stop or at what point should i tell my doctor about this ?

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  • mike44490
    mike44490 jason65694

    Posted

    had similar issues then started running a temperature. ended up in hospital and now being checked for hep b and c and bone marrow damage. shame, cos the pills were working on the U C!
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  • barbara02082
    barbara02082 jason65694

    Posted

    Hi Jason I am on azathioprine and am into my fourth week of treatment the first few weeks were ok but this last week I have felt crap, been feverish, nausea finally being violently sick Thursday pm, and to cap it off Friday night with really bad diarrhoea I have lost a whole week feeling ill which I am blaming on the medication, due to see the gastroenterologist at the end of the month just unsure if I tell him I want to stop treatment. Seems a lot of people suffer on this drug not sure if it's worth it
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    • bridget33194
      bridget33194 barbara02082

      Posted

      Hi Barbara I had much the same experience on this drug.  After my third attempt on that evening 10.pm I couldn't leave the toilet from due to severe vomiting and severe explosive diarrhoea.  Grahic as it may sound but both ends were severely actice at the same time I have seen experienced anything like it in all of 14 years suffereing from colitis.  I was rushed to hospital seriously dehydrated high blood pressure and a tempreture of 40c I was sick spent 3 days on fluids.  Home a week now still have chest infection very weak no strength.  I feel a slight improvement an experience that I will never forget.  
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  • barbara02082
    barbara02082 jason65694

    Posted

    Hi Jason thanks for the reply. I have decided that Azathioprine is not for me so I will talk to the specialist about an alternative for my AIH. I think that I would rather take my chances with out drugs than to feel as I have this week for sure can't do with loosing a week every time I pick something up, I know it takes a while to get active but must be hitting my system quickly. Can't face a UK winter with the thoughts of being ill. Glad you are feeling better.
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