Azathioprine with ulcerative colitis

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Hi guys wonder if anyone can help ive been on azathioprine for Approx 6 weeks and the last 2 weeks have been hell !! My knees feel like they've been shot im not sleeping in the nights always have a headache cold sores chesty cough sinus trouble ! Think thats about it lol just wondered if this is ever going to stop or at what point should i tell my doctor about this ?

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8 Replies

  • Posted

    I got chrons disease and on azathioprine i hate it makes every day harder then the day b4 and my knees omg
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  • Posted

    had similar issues then started running a temperature. ended up in hospital and now being checked for hep b and c and bone marrow damage. shame, cos the pills were working on the U C!
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  • Posted

    Hi Jason I am on azathioprine and am into my fourth week of treatment the first few weeks were ok but this last week I have felt crap, been feverish, nausea finally being violently sick Thursday pm, and to cap it off Friday night with really bad diarrhoea I have lost a whole week feeling ill which I am blaming on the medication, due to see the gastroenterologist at the end of the month just unsure if I tell him I want to stop treatment. Seems a lot of people suffer on this drug not sure if it's worth it
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    • Posted

      Hi Barbara I had much the same experience on this drug.  After my third attempt on that evening 10.pm I couldn't leave the toilet from due to severe vomiting and severe explosive diarrhoea.  Grahic as it may sound but both ends were severely actice at the same time I have seen experienced anything like it in all of 14 years suffereing from colitis.  I was rushed to hospital seriously dehydrated high blood pressure and a tempreture of 40c I was sick spent 3 days on fluids.  Home a week now still have chest infection very weak no strength.  I feel a slight improvement an experience that I will never forget.  
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  • Posted

    Forgot to ask how you are feeling now
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    • Posted

      Hiya i stopped taking it just after that post felt much better within a week im now on infliximab infusions and they worked wonders for me with no side effects try asking if you can start that treatment its expensive thats why they dont offer it out freely hope you get well soon 
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  • Posted

    Hi Jason thanks for the reply. I have decided that Azathioprine is not for me so I will talk to the specialist about an alternative for my AIH. I think that I would rather take my chances with out drugs than to feel as I have this week for sure can't do with loosing a week every time I pick something up, I know it takes a while to get active but must be hitting my system quickly. Can't face a UK winter with the thoughts of being ill. Glad you are feeling better.
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