Azithromycin: "To do or not to do."
Posted , 12 users are following.
Charlie, you have recently stopped AZ. for cramping. How are you? Hope you are better.
Is anyone else either using AZ or have used AZ in the past. What experiences have you had, etc.
I have been on AZ for two monts and am having many fewer infections, infact none.. But of course I would rather not be reaping havoc on my GI tract and breading SuperBugs.
Thanks for any advice in advance.
Best
Russ
1 like, 65 replies
charles97600 Russell27NOLA
Posted
Hiya,
Just an update on my AZ,it really is working well for me better now then ever before,I will be going for a CAT Scan on the 26th to see where I am now also my Sinus.
So to date I don't need the Neb Meds anymore, so now I just do the AZ, I do 3 times a week ( 250 ml ) and at night 2 puff Simycort,still do my Alternative Meds and do my Sinus cleaning,but it is working okay still have coughing but very little,
I feel anyone with BX should try it,and see for themself if it is for them.
Best to all,
Charles
Russell27NOLA charles97600
Posted
Charlie, I agree.The 250mg AZ MWF has chaged my life. I actuall took a break for a week six weeks ago becasue I had been on 500mg MWF and wanted to clear my system. As it turned out I should have just started the 250mg. In just 6 days I began to have an exacerbation and went on steroids for a week. Now I'm back to normal. I do asthma meds and or NS as needed and am able to get all of my sputum up usually around 8 or 9PM.
Glad to hear you doing well,
Russ
elizabeth90709 Russell27NOLA
Posted
Thanks
Liz
Russell27NOLA elizabeth90709
Posted
I went off for a week before I started taking the 250 and began to have an exacerbation as you may have seen in my post.
I will check to see what other ideas or showintg up on the internet and share them if I find something.
Hope ypu are better all to soon
Russ
charles97600 elizabeth90709
Posted
Hello Liz,
As I started the AZ I also was on the Nebelizer doing Sodium Cholride 03.5ml every 6 Hrs followed by Albertol same dose, this really helped get up the stuff especially before bed and as I said I still do the symbicort 2 puffs before bed,which helps me sleep right thru the night.
Now I'm off the Neb and just do the AZ & Symbicort mabe ask your Pulmonary about that when you go.
Regards,
Charlie
Russell27NOLA elizabeth90709
Posted
Liz, I was very tired last night and should have mentioned also the use of NS nebs at night to see if you can get the most sputum up before you going to bed.
We are all differnet it seems in how the mucous plays out with our BX. I can usually only bring sputum up between 8 and10 pm. Even my pulmonologist thought that strange. On a reare occassion , I think because I am overly tired, I will get mucous up in the late afternoon.
Charlie is giving his routine below. I'm not sureI saw what you do for mucous thinning with saline or otherwise. I dont know if you are having so much mucous that purging before bed at night only lessens the amount of mucous that you will need to purge during the night.
And by the way, I have not noticed any chage in the amount of mucouse that I cough up since beginning with the AZ.
I only am having a decrease of exacerbations from 12 per year to so far none, except when I went off the AZ 500 for one week to transfer to AZ 250.
Hope this helps,
Please keep me posted on your progress. I will do some research on the Web to see if anything that may help shows up.
Best
Russ
elizabeth90709 Russell27NOLA
Posted
regards
Liz
elizabeth90709 charles97600
Posted
Thanks for your advice
regards
Liz