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To sum up; I was given a course of B12 injections for a week, then a blood test to check my B12 levels was taken 5 minutes after the last injection. My GP then called to tell me my B12 levels were 'unusually high', I explained that the test was taken just after the course and after a long silence he replied Yes well the levels are unusually high so you won't need those any more, maybe it is an underlying infection? Thank you.' and then hung up.
Four months later I feel terrible, but I don't know how to get them to do another test to check my B12 levels -and- I'm sort of miffed they would suggest it could be an underlying infection but not help me follow that up.
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I'm 26 years old, I started feeling really awful about 6 years ago. I felt confused, breathing felt hard, my body fely heavy. I would feel extremely full and tired after eating small meals. Mostly I found functioning suddenly became really difficult.
I got a lot of blood tests from a lot of different doctors, each time they would ring me up, tell me that my red blood cell levels were 'a bit low but it would be the time of the month', then leave me with that. I'd continue to feel unwell and book again a few months later and get the same.
Then nearly 2 years ago the GP I was going to see was away and I was sent through to the nurse practitioner instead, who asked me when my next B12 jabs were due.
I'd never heard of this and told her so, she told me with results so low I should have been on them a while ago but as a practitioner she couldn't book the full starting course. I had one jab then, and two more at three month intervals after that. I felt so much better, then I moved houses.
For starters it was 2 months before I managed to change my GP , then I was told I needed a course of injections all in one week as I'd never had this, but that they wanted to check by B12 levels themselves. So they booked an injection on monday, Wednesday and Friday and the blood test 5 minutes after the injection on the Friday.
The long and short of it is I'm out of the loop now, when I try to get another blood test done I'm told I don't need it, but I feel terrible and rather than getting any sort of solution to this I'm back to square 1.
Please can someone give me some advice on where to go from here? Should I try to book privately somehow? (I'm not sure I can afford it)
I'm so exhausted, I feel like this is ruining my life but there's nothing I can do about it?
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