Back from holiday - what have I missed???
Posted , 16 users are following.
Come on people - give me an update on what's happening in your world!
I'm doing really well - down to 4.5mg daily and 20mg MTX weekly (plus folic acid 3 x 15mg x 3 days).
I have no pain to complain of, and I'm bright, alert and happy back working full time.
My only issue is losing all the weight I've put on in the past 12 months!
1 like, 37 replies
sheila28713 FlipDover_Aust
Posted
Well, last week I met Eileen when she and her husband were in Calgary - we spent several hours together and didn't talk PMR much at all (our husbands were with us). We can save that for the forum. Eileen is the first person I've met with PMR. Hard to believe in a way. And I've learned so much from her fhrough this forum about this condition, so it was a pleasure to meet her in person.
I'm now at 2.5 mg through the DSNS and will stay there for a good while now before reducing further. It is almost 3 years now since starting Pred.
Glad to hear you are doing well, Flip.
EileenH sheila28713
Posted
We had such a good time - and I know David enjoyed it too! We were back at the restaurant in Canmore the next day for another helping of fish and chips - except it wasn't on the dinner menu But the waiter asked the kitchen - and they did it for him!
We spent 2 days that week in Vancouver having a PMR group meeting and then have been there this week with Diana and Don before coming here to Chicago for the work part of the trip.
Heading home on Thursday night ...
sheila28713 EileenH
Posted
Wow Eileen, what are the odds of the tour taking you to the same Canmore restaurant that we went to!? So glad David got his fish and chips again. I hope it has been a wonderful vacation for you both in between the working aspects of the trip. Bet you'll be glad to be back home. We've missed your posts!
EileenH sheila28713
Posted
No, we were left to our own devices for all meals except breakfast which was provided at the hotels we stayed in - mostly buns and stuff so it was our choice. We were about 10-15 mins walk away from the main street so it was a nice stroll before dinner. The hotel had a very good restaurant too - but no fish and chips!
I'm rather looking forwards to a rest - sleep for a week feels on the menu already and we have yet to fly/drive home!
constance.de FlipDover_Aust
Posted
Flip, I don't know whether you read my post about 16 days ago heading
"How about trying this then". If you can find it you will know what I have been doing!!
You seem to be doing really well. Don't start doing too much though. The trouble is, as soon as we start feeling better we usually overdo things.
Is weight a problem with you?
FlipDover_Aust constance.de
Posted
I'm still trying to catch up - there's a lot of posts in 2 weeks!
YES, weight is a huge problem (pun intended). These days I believe that half my mobility issues are caused from excess weight. I'm so uncomfortable. It's really effecting me.
EileenH FlipDover_Aust
Posted
FlipDover_Aust EileenH
Posted
Flutterbie57 FlipDover_Aust
Posted
Of course I have totally lost the thread - is this since you have been on MTX ?
FlipDover_Aust Flutterbie57
Posted
Yes, I've only improved significantly since starting the MTX. It took about 6 weeks to really kick in and I've been able to reduce from 20mg to (as of yesterday) 4.5mg. AND feeling good.
Don't get me wrong, I still know I have PMR - I can't walk fast, I struggle to get out of chairs and the car, but I'm not in pain any more.
Flutterbie57 FlipDover_Aust
Posted
judy93591 Flutterbie57
Posted
FlipDover_Aust Flutterbie57
Posted
Nope, other than some raised liver function test results - the rhuemy wasn't concerned, so neither am I. No point worrying!
judy93591 FlipDover_Aust
Posted
ON A VERY POSITIVE NOTE, FOR THOSE LIKE MYSELF, WHO HAVE HAD ALL THE SIDE EFFECTS POSSIBLE FROM PRED. I GOT MY HAIR GACK. NEVER EVER ! THOUGHT THAT WOULD HAPPEN IN MY LIFE. I AM ECSTATIC! So everyone, HANG IN THERE! There is hope!
faye______00403 judy93591
Posted
I just went through two cataract removal surgeries....One in
March and one in May....not a bad procedure. Over with in
about l5 minutes....be prepared to see so much better and
also be prepared to see a lot of places in your house that you
thought were clean and are not, plus.....bummer....more
wrinkles than I thought I had but I don't even need glasses.
Oregonjohn-UK judy93591
Posted
Not much chance of that here Judy, I was nearly bald before pred! I don't think I will ever get back to my teen/twenties level.
Old and bald but not out!!
FlipDover_Aust judy93591
Posted
This is great news!!! You are really lucky you didn't lose your sight!
MTX is amazing - when it works! I would urge anyone who is struggling with pred to give it a go.
FlipDover_Aust Oregonjohn-UK
Posted
Don't worry John - 'some' women find bald men very attactive.... lol
judy93591 faye______00403
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judy93591 Oregonjohn-UK
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