1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Back from holiday - what have I missed???

Posted , 16 users are following.

FlipDover_Aust
FlipDover_Aust

Come on people - give me an update on what's happening in your world!

I'm doing really well - down to 4.5mg daily and 20mg MTX weekly (plus folic acid 3 x 15mg x 3 days).

I have no pain to complain of, and I'm bright, alert and happy back working full time.

My only issue is losing all the weight I've put on in the past 12 months!

1 like, 37 replies

37 Replies

Prev
  • maurice1962
    maurice1962 FlipDover_Aust

    Posted

    Flip over aust my names morry and im from brissy . I was diagnosed with this condition about a month ago although i know ive had it for about 8 weeks.Im om 20 mgs a day to keep pain at bay. The hands have been blowing up last few days. Do u think its the prednisone or the little exercise i tried a few days ago. Trying to get some strength back so i can get back to work.Financially killing me 😡😡
    • FlipDover_Aust
      FlipDover_Aust maurice1962

      Posted

      Hi Morry, sorry to welcome you to the PMR club!

      I really feel for you, the first few months are so hard - mostly as you learn to adjust to your new life. This is not a disease that will go away quickly. The drugs will help, but not cure you.

      I read on another post that you are unable to work - there's nothing you can do about that other than just try to adjust. Do not try and 'get some strength back' - you will do more harm than good.

      Make sure your wife understands the disease and how it is effecting you. This is a good starter document:

      patient.info/health/polymyalgia-rheumatica-leaflet

      Maybe you can look at this time as an opportunity to re-train in a new field?

      The pred could be causing your hands to blow up, try not to stress, it will probably settle down as you start reducing your dose.

      READ everything you can on here - it's the best source of information you can find.

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.